World Duchenne Awareness Day 2019

Published Date
06/09/2019
Author
Catherine Rowland
Category
Care & Support

7 September marks World Duchenne Awareness Day.  Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as Duchenne, from the moment of diagnosis and beyond.

What is Duchenne muscular dystrophy?

Duchenne muscular dystrophy causes muscles to weaken and waste over time, leading to increasing and severe disability. The condition affects not only muscles used for movement, but also the heart and vital breathing muscles.

It mainly affects boys, but girls can be manifesting carriers. There are around 2,500 boys and young men in the UK living with the condition. Every year 100 boys in the UK are born with Duchenne muscular dystrophy.

How we’re here to help

We understand the everyday challenges of living with a muscle-wasting condition. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.

How you can get involved

  • Read about Aston Walls (pictured) who has Duchenne and found confidence through Powerchair football.
  • Watch this video to find out more about the latest research into Duchenne at the MDUK Oxford Neuromuscular Centre.
  • Read about the new three-year research project which is investigating a new way to deliver gene therapy for Duchenne.
  • Join in the conversation on Twitter by following the #WorldDuchenneAwarenessDay and #WDAD19 hashtags.
  • Share our infographic on social media to help us raise awareness.
  • Find out how to obtain an alert card which will help you inform healthcare professionals of key issues relating to your condition in an emergency.
  • Read and download our Duchenne factsheet.

Visit our Duchenne muscular dystrophy page for up-to-date information and resources about the condition.

Keep in touch