Tireless Tyrone volunteer Claire O’Hanlon hasn’t stopped fundraising for Duchenne charities since her son Luke was diagnosed with the condition, aged 13 months, in 2012 and
Kinetic Solutions, a leading software provider, have entered two staff teams to this year’s event.
Therapeutic development generally takes place in three successive stages: basic, preclinical and clinical research.
We are in an exciting time for new research and treatments for muscle-wasting conditions, but keeping up with the latest developments can often be hard and confusing.
Our Helpline team are the first stop for answers, support or just to talk to someone who knows about muscle-wasting conditions.
Equipment is fundamental to getting the right physical support for your condition.
Everyone’s experience of living with a muscle-wasting condition is different, but speaking with someone else having a similar experience can really help.
People living with rare conditions often face difficulties finding reliable information and the right services for them.
Our Advocacy service is here to help you get the care, support, services, benefits and equipment you are entitled to.
My son, Connor, has Duchenne muscular dystrophy, so I like to make sure I take on a challenge every year for Muscular Dystrophy UK.
I’ve never acted and am not particularly social, but I remember from the time I first watched The X-Files I always wanted to be an extra in a scene, to be part of that