Walking up and down 1000 steps a day is having to become a normal routine for Big 60 fundraisers Georgia Santry and David Burke.
Mark was diagnosed with limb girdle muscular dystrophy in his 30s. He noticed in his late 20s that he could not walk or run as well as he used to.
Jenson’s parents describe him as a happy, fun-loving little boy who is always smiling and is a joy to be around.
Jennie has myotonic dystrophy – the same condition that affects 16 close family members.
Lynne was diagnosed with a rare form of spinal muscular atrophy when she was 40. She is now unable to work, and took ill-health retirement when she was 46.
Alex’s muscle condition, mitochondrial myopathy, causes him fatigue and constant pain, which can be controlled to some degree with drugs.
Louise was diagnosed with FSHD when she was 17.
Cara McDonald, 27, has inspired her friend and carer to write four original children’s books.
May Macleod met Cara when she applied for a support role as a carer.
Life has suddenly got much, much better for Garry, 49, who lives with Charcot Marie Tooth (CMT) and who has just taken delivery of a new Powerchair, thanks, in part, to a grant fro
With several family members living with myotonic dystrophy, Adam Smith, 47, from the Cotswolds, started doing the Oxford Town and Gown 10k ten years ago.
Climbing Kilimanjaro would pose an incredible adventure for most people, but 29 year old Oliver Teather, who lives with Facioscapulohumeral muscular dystrophy (FSHD) Type 1, has ju