My name is Neeru Malhotra and I’m the Head of Information and Support Services at Muscular Dystrophy UK. My brother has Duchenne muscular dystrophy.
Rianna Davis, 25, has Congenital muscular dystrophy (CMD) .
For me and my husband Matt, Christmas has always been about family – getting together with our relatives, eating a bit too much and sharing some festive fun.
Peter Neville, 41, from Newmarket, has Charcot-Marie-Tooth disease (CMT).
Martin Hywood, 43, from Aylesbury in Buckinghamshire, was diagnosed with limb girdle muscular dystrophy (LGMD) twenty years ago.
George Booth, six, from Weston, Stafford, began getting muscle spasms in his calves aged two. As time went on, these became more frequent and painful, spreading to his thighs.
Suzanne Glover, 24, from County Down, was diagnosed with SMA Type 2 when she was two years old.
Val Wintle, 57, from Poole, Dorset, was diagnosed with mitochondrial myopathy in 1996.
Shaye Reid-Watson, 16, from Streatham, is a striker for the Sevenoaks Powerchair squad after being talent-spotted playing for Crystal Palace.
Martyn Sibley is the third most influential disabled person in the country, according to the ‘Disability Power 100’ list.
Lucy Brady, whose daughter Ella, six, has Charcot-Marie-Tooth disease, says that raising awareness of the condition makes life easier for herself and her family.