Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said:
“The situation around shielding for people living with a muscle-wasting condition is already confusing. Not everyone with one of these rare conditions is classed as extremely clinically vulnerable, but many who are have struggled to have this confirmed. As a result, people have contacted us about issues such as being asked back to work by their employers when this would not be safe.
“Lockdown has been a stressful time for many families living with muscle-wasting conditions who are shielding. While some will welcome the new guidance, we are now faced with further confusion about why the advice has changed so suddenly when only a few weeks ago the Government’s recovery strategy said shielding would have to remain in place for a further period.
“We look forward to further clarification and more detail so we can support our community to make informed decisions about what they can and cannot do.”
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Notes to editors
About muscle-wasting conditions
- More than 70,000 children and adults in the UK have a muscle-wasting condition.
- Muscle-wasting conditions may be inherited or strike out of the blue. These conditions cause muscles to weaken and waste over time, leading to increasingly severe disability. Some affect the heart and muscles vital for breathing, cutting lives short.
Muscular Dystrophy UK
- Muscular Dystrophy UK is the charity for 70,000 children and adults living with muscle-wasting conditions. We provide vital information, advice and support to help people live as independently as possible. We accelerate progress in research and drive the campaign for access to emerging treatments.