These are exciting times, with fresh news about research developments appearing every week.
Find out about the latest research news below and also visit our Breaking News in Research page.
AMRC calls on Government to match-fund charity research
The Association of Medical Research Charities (AMRC) is calling on the Government to match-fund research in the sector over the next three years.
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AMRC predicts medical research charities will lose 38 percent of income
12/06/2020A recent survey by the Association of Medical Research Charities (AMRC) has found that members – including Muscular Dystrophy UK – will experience an average loss of 38 percen
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Roche extends Risdiplam compassionate use programme
11/06/2020Roche, the pharmaceutical company behind the SMA treatment Risdiplam, has extended its compassionate use programme to potentially include patients who cannot receive Spinraza becau
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Request for NICE to reconsider the decision to suspend the appraisal process for risdiplam
07/05/2020Joint letter to NICE regarding the suspension of the appraisal process for ridisplam
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Statement: Cancellation of 2020 research Grant Round
06/05/2020Muscular Dystrophy UK regrets to announce that, due to the financial effect Covid-19 is having on our ability to generate income, we are cancelling the current Grant Round in 2020.
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British Science Week 2020
03/03/2020For this year’s British Science Week, the theme of which is “Our Diverse Planet”, we’d like to tell you about some exciting research we’ve funded.
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New guidance on the safety of medicine use in people with mitochondrial myopathies
13/02/2020Updated guidance on the medicines that should be avoided or used with caution in people with primary mitochondrial disease from the IMP
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Quality of life study into Duchenne
05/02/2020Research is being carried out looking at the impact of Duchenne on family carers.
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New publication gives insights into the discontinued DMD drug, ezutromid
31/01/2020The results from the MDUK-funded research project gives insight into the drugs, ezutromid
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Update from the European Neuromuscular Centre
29/01/2020The ENMC is an international organisation that supports research for neuromuscular conditions and strives to facilitate communication among scientists and clinicians.
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