These are exciting times, with fresh news about research developments appearing every week.

Find out about the latest research news below and also visit our Breaking News in Research page.

Updates from the FSHD, myotonic dystrophy, Col6- dystrophies and GNE myopathy registries

The patient registries for FSHD, DM, COL6-dystrophies and GNE myopathy have shared their latest newsletters.

Read more


Keep in touch