These are exciting times, with fresh news about research developments appearing every week.
Find out about the latest research news below and also visit our Breaking News in Research page.
Muscular Dystrophy UK and Healx announce partnership to identify FSHD treatments
MDUK and Healx announce new partnership to identify FSHD treatments
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Update on FSHD drug development programme
11/09/2018Facio Therapies has announced that it has selected several compounds as lead candidates for its FSHD drug development programme.
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FSHD drug awarded US Orphan Drug Designation
01/06/2018Genea Biocells has announced that the US Food and Drug Administration (FDA) has granted Orphan Drug Designation to GBC0905 for the treatment of FSHD.
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FSHD drug receives fast track designation
01/05/2018Acceleron Pharma has announced the US Food and Drug Administration has granted Fast Track Designation to ACE-083.
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FSHD drug receives fast track designation
01/05/2018Acceleron Pharma has announced the US Food and Drug Administration has granted Fast Track Designation to ACE-083, for the treatment of FSHD.
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Acceleron announce preliminary results from FSHD trial
31/01/2018Acceleron Pharmaceuticals has announced preliminary results from its phase 2 trial testing ACE-083 in adults with facioscapulohumeral muscular dystrophy (FSHD).
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Pain impacts on quality of life of people with FSHD
17/11/2017A research study using data from the UK Facioscapulohumeral muscular dystrophy (FSHD) Patient Registry has been published recently.
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Acceleron’s update on myostatin inhibitors
20/09/2017Acceleron Pharma has released an update on its neuromuscular programme. It is currently developing two drugs that aim to increase muscle mass by blocking myostatin.
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Muscle strength tests could help to predict bone health in people with FSHD
08/08/2017It was not known whether facioscapulohumeral muscular dystrophy (FSHD) affects bone health, and a recent study published in Muscle & Nerve begins to address this question.
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Adult volunteers needed to test wristband activity monitor
13/07/2017We would like to inform you of a research study for adults with progressive muscle weakness caused by muscular dystrophy or inclusion body myositis (IBM).
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Facio raise €4.8mil for FSHD drug screening
20/06/2017Facio Therapies announced today that it has raised €4.8 million from a group of shareholders.