This issue reports back on our State of the Nation report, which revealed that many people with muscle disease are still being denied access to specialist services. Getting the right type of care is vital and we will continue to campaign hard for improvements.
We also continue to fund unique events, like Family Weekends, that offer children and parents the valuable chance to meet and receive free, up to date information. You can also read an update on the “exon skipping” clinical trial – this is just one of the vital research projects that we support in the pursuit of treatments and cures for these devastating conditions.
Find out more Campaign Winter 2008 – 2009