In this issue:
Research news about clinical trials excites us all. Even if you are not affected by Duchenne muscular dystrophy and live with another form of neuromuscular disease, the update on the MDEX trial on page 16 will have you on the edge of your seat. After all, some technologies may well be transferable across diseases.
Trailblazers, our young campaigners’ network, are doing exactly what it says on the tin: trailblazing! Their report on how difficult – and often downright impossible – it is for disabled people to access public transport adequately was presented to MPs in the House of Commons and has received media coverage both nationally and regionally. This is a great service to us all, given freely of the Trailblazers’ own time and energy.
If you have ever wondered to what extent children with a neuromuscular disease can engage in sport, see the Lifestyle section on page 12 and read about the fun that it brings to all. Those who attend our Family Weekends (page 25) can try abseiling, climbing, zipwires, canoeing and archery; if you thought none of this was possible with muscular dystrophy, then think again. Amazing!
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