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Please help us keep up the pressure for access to the #SMA treatment #Spinraza for families like Sophie's. You can… https://t.co/RF4N1dJhII
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Muscular Dystrophy UK

5 hours ago

Being able to access psychological support is crucial to those affected by a muscle wasting condition. Providing the right emotional support to children, adults and parents is important in addition to medical services. At our National Conference on Saturday 13 October we hear from Dr Sadie Thomas-Unsworth about support for both parents and individuals affected by conditions. Join our campaign on improving psychological support services by booking your place today >> http://qoo.ly/s7tvr ... See MoreSee Less

Muscular Dystrophy UK

10 hours ago

We are disappointed to share the news that following a re-examination of the Duchenne treatment Exondys 51, the Committee for Human Medicinal Products (CHMP) has issued a second negative opinion. We know this decision will be a blow to families and we share their disappointment.

It is encouraging to hear that Sarepta remains committed to bringing this treatment to Europe, and knowing there is a drug out there with the potential to help children walk for longer gives hope for a better future. It is an encouraging time for research and we know there are treatments on the horizon. We will keep pushing to ensure people can access these quickly.

Read more here >> http://qoo.ly/s7mqn ... See MoreSee Less

© 2015 Muscular Dystrophy UK Registered Charity No. 205395 Scottish Registered Charity No. SC039445

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