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Muscular Dystrophy UK

21 hours ago

“The grief of loss is always present when living with a muscle-wasting condition but on the flip side, it certainly has a way of sharpening life and bringing focus to priorities and choices. Everyday life can be a real struggle, from the moment I pull myself up from my bed in the morning to the moment I collapse back into it at the end of the day – and everything in-between.”

Louise Halling has limb girdle muscular dystrophy and has shared her experiences of living with the condition in a fly-on-the-wall documentary series for BBC Radio 4. Here, she tells us a little more about the series, how she has found lockdown, and day-to-day life >> https://bit.ly/2NUp8aV ... See MoreSee Less

Muscular Dystrophy UK

2 days ago

Director of Care, Campaigns and Support Rob Burley chats with volunteer Bryan Gould, who has OPMD, and Dr Alison Kay whose eight-year-old son, Bertie, has Ullrich congenital muscular dystrophy.

During the Q&A, Bryan and Alison discuss their experiences of shielding and thoughts on the Government's plans for shielding. ... See MoreSee Less

© 2015 Muscular Dystrophy UK Registered Charity No. 205395 Scottish Registered Charity No. SC039445

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