East of England Neuromuscular Clinical Network

The East of England Neuromuscular Clinical Network was launched in October 2013 as the regional arm of the the Bridging the Gap project.

The network pools regional neuromuscular expertise by bringing together NHS commissioners, people with muscle wasting conditions and their families, clinicians and allied health professionals to ensure that specialist and community neuromuscular services are strengthened in the East of England.

The members meet regularly and the forum provides a platform for patients and clinicians to discuss and address gaps in local services and to share their own experiences of local neuromuscular health care; providing important thoughts on how the lives of people with muscle wasting conditions can be improved.

Muscular Dystrophy UK shares quarterly updates on developments in neuromuscular services in the East of England which can be read below.

Hannah-Lou Blackall

Hannah-Lou Blackall

Hannah-Lou comes from King's Lynn and has congenital muscular dystrophy

"I found that in the East of England there is a large gap between services that are necessary and current services provided, and as someone who has struggled to access services, the chance to be involved with talking directly to professionals has been valuable in attempting to make them understand issues from people with muscular dystrophy’s standpoint."

Peter Edwards

Peter Edwards

Peter comes from Cambridge and has nemaline myopathy

"I felt it was very important to provide more information about neuromuscular conditions to the public as they are not given nearly enough publicity as they should be. I have enjoyed attending the forums as I feel it is vital to meet with people in similar situations as myself and be able to share our experiences together."

  • Gautam Ambegaonkar - Consultant Paediatric Neurologist, Cambridge University Hospitals
  • Hannah - Lou Blackall– Service user
  • Joni Cox - Specialist Physiotherapist, Colman Centre for Specialist Neuro Rehab
  • Peter Edwards - Service user
  • Mary Emurla - Strategic Clinical Network Manager, East of England Strategic Clinical Network
  • Daniel Eve - Senior Service Specialist, East Anglia Area Team, NHS England
  • Andy Hiscock - Regional care adviser
  • Nancy Jordan - Service user
  • Deepa Krishnakumar - Consultant Paediatric Neurologist, Cambridge University Hospitals
  • Kate McGlashan - Consultant in Rehabilitation Medicine, Colman Centre for Specialist Rehabilitation Services, Norfolk Community Health and Care NHS Trust
  • Andrea Russell - Regional care adviser
  • Julie Taylor - Quality Improvement Lead, East of England Strategic Clinical Network
  • Carolyn Young - Regional Programme of Care Manager, NHS Midlands & East
  • Charlotte Brierley - Consultant Neurologist, Cambridge University Hospitals Trust
  • Maxwell Damian - Consultant Neurologist, Cambridge University Hospitals Trust
  • Gill Parton - Senior Community Paediatric Physiotherapist, City Care Centre, Peterborough
  • Andrea Russell - Regional care advisor
  • Carol - Ann Wood – Regional care advisor
  • Carolyn Young - Regional Programme of Care Manager, NHS Midlands & East

Neuromuscular specialist centres

There are 5 regional neuromuscular centres in the East of England. Find out more about your local neuromuscular service using the links below.

Addenbrooke’s Hospital Cambridge
The Colman Centre
West Suffolk Hospital
Norfolk and Norwich University Hospital
East Suffolk Hospital

Muscle group

The East of England Muscle Group meets in local groups three times a year and is fighting for service improvements across the region. Find out when a muscle group meeting is taking place near you by using the link below.

East of England Muscle Group

Keep in touch