Newcastle Upon-Tyne Hospitals – Royal Victoria Infirmary

The Royal Victoria Infirmary is part of the Newcastle University Teaching Hospitals NHS Foundation Trust. It’s neuromuscular service offers specialist multidisciplinary clinics for patients with mitochondrial and other metabolic muscle disorders, as well as acquired muscle disease including inflammatory myopathies. The mitochondrial service is one of 3 national centres for diagnosis and management of patients with mitochondrial disease.

Diagnostic services for patients with muscle disease including neuroradiology, neurophysiology and neuropathology are based at the Royal Victoria Infirmary. Clinical trials are a major focus of the clinical teams at the Muscle Centre and Royal Victoria Infirmary and include on-going studies in mitochondrial disorders and inclusion body myositis.

How to access the service

A patient can be referred for treatment in the centre by a physiotherapist, occupational therapist, GP, consultant, specialist nurse or a care advisor.

Main contact number:

(0191) 233 6161

Website:

Royal Victoria Infirmary

Dr James Miller

Dr James Miller

Consultant Neurologist

Dr James Miller has a specialist interest in neuromuscular disease and in particular acquired and immune-mediated disorders including myositis, CIDP and myasthenia gravis. Dr. Miller has established specialist multidisciplinary clinics for patients with dermatomyositis and with paraprotein related neuropathies.

Professor Patrick Chinnery

Professor Patrick Chinnery

Consultant Neurologist

Professor Chinnery is the Director of the Institute of Genetic Medicine at Newcastle University. He trained in neurogenetics at Queen's Square in London, is a Wellcome Trust Senior Fellow in Clinical Science and an NIHR Senior Investigator.

Professor Doug Turnbull

Professor Doug Turnbull

Consultant Neurologist

Professor Turnbull is the National lead of the National Highly Specialised Services for Rare Mitochondrial Diseases of Children and Adults. This involves 3 centres (Newcastle, London and Oxford) and provides diagnostic and specialist clinical services for patients with mitochondrial diseases. He is also the Director of the Wellcome Trust Centre for Mitochondrial Research

Edwina Perkins

Edwina Perkins

Regional Care Advisor

Edwina has worked as a regional care advisor since 2006, having come from a background in Social Work in Learning and Physical Disability. Edwina facilitates Muscular Dystrophy Campaign condition specific days, family weekends and helps run care events in the North East region. She co-ordinated the Transition Guidelines, and works with local colleges to train staff in supporting teenagers and young adults with neuromuscular conditions. Get in touch with Edwina by E: Edwina.perkins@nuth.nhs.uk or T: 0191 241 8761.

Other key people in the team include:

  • Dr Andy Schaefer
  • Dr Bobby McFarlane
  • Professor Rita Horvath
  • Dr Grainne Gorman

Children

Clinics are held at Newcastle Royal Victoria Infirmary
  • Specialist multidisciplinary mitochondrial and other metabolic muscle disorders clinic
  • Acquired muscle disease including inflammatory myopathies clinic
  • Diagnostic clinic
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