The Thames Valley and Wessex Neuromuscular Forum was launched in October 2013.
The forum pools regional neuromuscular expertise by bringing together NHS commissioners, people with muscle wasting conditions and their families, clinicians and allied health professionals to ensure that specialist and community neuromuscular services are strengthened in the region.
The members meet regularly and the forum provides a platform for patients and clinicians to discuss and address gaps in local services and to share their own experiences of local neuromuscular health care; providing important thoughts on how the lives of people with muscle wasting conditions can be improved.
Muscular Dystrophy UK shares quarterly updates on developments in neuromuscular services in the Thames Valley and Wessex region which can be read below.
"I became a neuromuscular champion because I wanted to find out more information about muscular dystrophy from the varying groups of people invovled with the associated conditions. I also wanted to meet others in similar situations to that of my own and be able to share this information amongst us all so that it helps people affected by muscular dystrophy have an easier life."
Neuromuscular Specialist Centres
There are 3 regional neuromuscular centres in the Thames Valley and Wessex region. Find out more about your local neuromuscular service using the links below.
The Thames Valley and Wessex Muscle Group Muscle Group meets in local groups three times a year and is fighting for service improvements across the region. Find out when a muscle group meeting is taking place near you using the link below.