The West Midlands Neuromuscular Network and was launched in October 2016, replacing the pre-existing regional neuromuscular forum, as the regional arm of the the Bridging the Gap project.
The network pools regional neuromuscular expertise by bringing together NHS commissioners, people with muscle wasting conditions and their families, clinicians and allied health professionals to ensure that specialist and community neuromuscular services are strengthened in the West Midlands.
The members meet regularly and the network provides a platform for patients and clinicians to discuss and address gaps in local services and to share their own experiences of local neuromuscular health care; providing important thoughts on how the lives of people with muscle wasting conditions can be improved.
Muscular Dystrophy UK shares quarterly updates on developments in neuromuscular services in the West Midlands which can be read below.
"I wanted to seek information about what is a little known condition by meeting with others who have both similar and very different conditions to my own. I also became a neuromuscular champion as I wanted to be better informed about what help and treatments are available such as hydrotherapy and medical massages, and how to access these."
"As I have a neuromuscular condition myself I felt that it was important to become involved in trying to find new ways for people with neuromuscular conditions to support each other, which will hopefully allow them to lead more proactive and full lives. I believe this will ensure that fewer people with neuromuscular conditions suffer emotionally, mentally, and physically as all too many people are currently."
"I attended my first Neuromuscular forum meeting in 2013 where I was pleased to be offered the opportunity to share both my sister’s and my experience of support here in the West Midlands. My involvement with the MDC as a neuromuscular champion has offered me the opportunity to actively campaign on behalf of fellow sufferers here in the West Midlands, something I feel very passionate about and I feel honoured to be able to support in whatever way I can."
- Dr Asad Ali - Consultant Respiratory Physician, University Hospital of North Staffordshire, Stoke on Trent
- Dr. Brendan Cooper - Consultant Clinical Scientist, Lung Function & Sleep, Queen Elizabeth Hospital Birmingham
- Sarah Freeman - Local Service Specialist, Birmingham, Solihull and the Black Country Area Team
- Sue Gallagher - Care Advisor
- Bryan Gould - Service user
- Sally Glover - Physiotherapy, Clinical Specialist Neurosciences, Queen Elizabeth Hospital Birmingham
- Deb Harris - Specialist physiotherapist, Birmingham Community Healthcare NHS Trust, West Midlands Rehabilitation Centre
- Ruth Hereford - Service User
- Yasmin Khan - Respiratory Physiology Department, Birmingham Heartlands Hospital
- Amy McClelland - Independent Psychologist and Otimis Healthhcare
- Heather McMurchie - Paediatric Neuromuscular Physiotherapist, Heartlands Hospital, Birmingham
- Naveed Mustfa - Department of Respiratory Medicine, University Hospital of North Staffordshire, Stoke on Trent
- Alison Noakes - Occupational Therapist, John Taylor Hospice
- Jane O’Connor - Muscular Dystrophy Care Advisor
- Dr Tracey Willis - Consultant Paediatric Neurologist, The Robert Jones and Agnes Hunt Orthopaedic Hospital, Oswestry
- Dr Martina Walsh - Consultant in Rehabilitation Medicine, West Midlands Rehabilitation Centre, Birmingham Community Healthcare NHS Trust
- Cathy Wogan - Paediatric Respiratory Nurse, Heart Of England NHS Foundation Trust
- Carolyn Young - Programme of Care Manager – Trauma, NHS England (Midlands & East)
- Anna Davis - Paediatric Neuromuscular Physiotherapist, Heartlands Hospital, Birmingham
- Dr Syed Huq - Consultant Respiratory Physician, QE Hospital Birmingham
- Jan MacGowan - Respiratory Team Leader, Heartlands Hospital
- Ben Parfitt - Quality Improvement Programme Lead, Strategic Clinical Networks
- Dan Park - Consultant Respiratory Medicine & Consultant ITU, Heartlands Hospital Birmingham
- Dr Helen Roper - Consultant paediatrician, Birmingham Heartlands Hospital
- Dr John Winer - Neurologist, Queen Elizabeth Hospital Birmingham
- David Salt - Service user
- Dr Ajit Thomas - Consultant Respiratory Physician, University Hospital of North Staffordshire
- Sarah Thompson - Service user
Neuromuscular specialist centres
There are 6 regional neuromuscular centres in the West Midlands. Find out more about your local neuromuscular service using the links below.
Birmingham Children’s Hospital
Birmingham Heartlands Hospital
West Midlands Rehabilitation Centre
Queen Elizabeth Hospital
University Hospital of North Staffordshire
University Hospital of Coventry and Warwickshire
The West Midlands Muscle Group meets in local groups three times a year and is fighting for service improvements across the region. Find out when a muscle group meeting is taking place near you using the link below.