Join us on Friday 21 March 2025 for our free Information Day in London for adults and parents of children living with a muscle wasting condition.

Hear from experts about a range of different topics, find out more about the advice and support we offer and meet other people affected by muscle wasting and weakening conditions.
This event is not only a great way to get expert information and support, it’s a chance to connect with others who have a muscle wasting or weakening condition and share your own experience, tips and advice.
You’ll also have the opportunity to talk to other organisations working in the muscle wasting and weakening community.
Last year we asked you what you’d like to hear about at our Information Days and we’ve shaped the agenda based on what you told us.
Speakers will cover topics including:
- Travel and accessible holidays
- Personal experience of living with a condition
- Physiotherapy and fatigue management
- Research and treatment updates
Our Information days are open to anyone across the UK.
More information
This event will be chaired by Wojtek Trzcinski, Chief Operating Officer at Muscular Dystrophy UK
10am – 10.30am
Registration, teas and coffees
10.30am-10.45am
Welcome & introduction
Wojtek Trzcinski l Chief Operating Officer
MDUK
10.45am – 10.55am
Services & Support updates
Neeru Naik I Director of Services and Support
MDUK
10.55am – 11.25am
Research update
Dr John Copier, Research Manager,
MDUK
11.25am – 12.25pm
Euan’s Guide: Joe’s Journey
Joe Logue I Community Manager
Euan’s Guide
12.25pm – 1.25pm
Lunch
South Bank Rooms
Following lunch:
Tailored sessions for adults will continue in the lower ground South Bank Rooms.
Tailored sessions for parents and families will take place in the ground floor Neighbourhood Room.
1.25pm – 2.10pm (South Bank Rooms)
Living Well, together: collective hope and resilience in the midst of loss and disability
Louise Halling, Counsellor and Psychotherapist &
Julie Oates, Psychotherapist
1.25pm – 2.10pm (Neighbourhood Room)
Mental wellbeing for families/parents, children
Kate Waters | Family and Systemic Psychotherapist, Great Ormond Street Hospital
2.10pm – 2.55pm (South Bank Rooms)
Exercise and physical activity for adults: what to do and how to do it
Sherryl Chatfield I Clinical Specialist Neuromuscular Physiotherapist
Atkinson Morley Neuromuscular Centre
St George’s University Hospitals NHS Foundation Trust
2.10pm – 2.55pm (Neighbourhood Rooms)
Physiotherapy management in children
Jennie Sheehan I Clinical Specialist Paediatric Physiotherapist in Neuromuscular Disorders
Evelina London Children’s Hospital, London
2.55pm – 3.25pm
Refreshments
South Bank Rooms
The following session is in the South Bank Rooms for all attendees
3.25pm – 4.10pm
Lived experience session
Priyaneet Kainth
MDUK Volunteer, living with CMT
4.10pm – 4.55pm
Enabling Independence through Equipment and Adaptations: The Role of Occupational Therapy in Neuromuscular Conditions
Veronica Dappio I Neuromuscular Care Advisor (South West London)
4.55pm
Closing remarks
Wojtek Trzcinski l Chief Operating Officer
MDUK