Join us on Wednesday 4 June 2025 for our free Information Day in Northern Ireland for adults and parents of children living with a muscle wasting condition.

Hear from experts about a range of different topics, find out more about the advice and support we offer and meet other people affected by muscle wasting and weakening conditions.
This event is not only a great way to get expert information and support, it’s a chance to connect with others who have a muscle wasting or weakening condition and share your own experience, tips and advice.
You’ll also have the opportunity to talk to other organisations working in the muscle wasting and weakening community.
Last year we asked you what you’d like to hear about at our Information Days and we’ve shaped the agenda based on what you told us.
Speakers will cover topics including:
- Research and treatment updates
- Participation for all in leisure & social activities.
- Physiotherapy – exercise & fatigue management
- Personal experience of living with a condition
Please note that topics covered during this event will focus on support and services available in Northern Ireland.