Join us for our 2025 webinar! Learn about the latest research on limb girdle muscular dystrophy and gain insights on living well with this condition.
This free, informative, and supportive session will cover topics relevant to adult and child care. It is open to people living with limb girdle muscular dystrophy and their friends, family and carers.
What you will gain
- Updates on groundbreaking research and treatments.
- Practical advice for living well with limb girdle dystrophy.
- The opportunity to have your questions answered by leading experts in the field.
Our webinars are hosted on Zoom, making it easy to join from anywhere in the UK. Don’t miss this change to gain valuable knowledge directly from specialists!
What to expect
Hear from leading experts who will share insights on key topics related to limb girdle muscular dystrophy. The panel includes:
- Prof Chiara Marini Bettolo – Consultant neurologist and clinical lead the Highly Specialised Service for Limb-girdle muscular dystrophies (LGMDs).
- Meredith James – Clinical Specialist Neuromuscular Physiotherapist. Involved in clinical and research activity for children and adults with Neuromuscular disorders.
- Alex Schofield – Senior Paediatric Physiotherapist.
- Rachel Salmon – Family Care Advisor. Neuromuscular Clinical Nurse Specialist (adults and children).
- Martin Hywood – Regional Corporate New Business Officer at Muscular Dystrophy UK. Providing a lived experience perspective.
- Sam McDonald – Registry Project Manager.
- Sian Craig – Neuromuscular Clinical Nurse Specialist (children).
- Zoe Harrison – Psychology graduate with NHS experience in paediatric mental health and youth support. Disabled podcaster and advocate.
Key information
Submit your questions before and during the session for our experts to address.
The webinar will be recorded and shared with all registrants. Register even if you plan to watch it later.
Together we are stronger.
This webinar is kindly sponsored by PTC. They have no control or influence over the event content.
Important note: Webinars are for informational purposes only and should not replace professional medical advice. Please consult your neuromuscular clinical team or health professional if you have concerns.
We look forward to seeing you there!
More support for you
Past webinars
Our free webinars offer you the opportunity to hear from expert speakers, share your experience and ask questions. They are held on Zoom so you can join from wherever you are in the UK.
Support and events
We know that talking to people with similar experiences is powerful. Our support groups are safe and welcoming places to talk to others affected by muscle wasting and weakening conditions, share experiences and meet people who understand what you’re going through.