A safe and confidential space for parents of children newly diagnosed with a muscle wasting or weakening condition. Led by our trained care and support team alongside professional counsellor Louise Halling.
We understand that your child’s new diagnosis can change everything and that having access to the right information and advice can make all the difference.
This free information session will cover how we can support your child to live well with a muscle wasting or weakening condition. There will also be an opportunity to connect with others in a similar situation of a new diagnosis.
What you will gain at our newly diagnosed session:
An introduction to our support services
- Our team can help with a range of needs, including understanding a diagnosis, emotional support, learning about local services, benefits and home adaptations and anything else connected to your child’s diagnosis.
- We also offer support groups, information days and webinars.
- Find out how our support can be tailored to you.
Support from counsellor and psychotherapist Louise Halling
- Louise lives with limb girdle muscular dystrophy and brings both professional expertise and lived experience.
A chance to connect with others
- Meet others whose children have also been recently diagnosed and share experiences in a supportive environment.
Who can attend our newly diagnosed session:
We understand that a new diagnosis process for muscle wasting and weakening conditions is not as straightforward as it should be.
You may:
- Have received your child’s diagnosis recently.
- Have experienced a long and complex diagnostic journey.
- Have had your child’s diagnosis changed.
- Been told your child has a muscle wasting or weakening condition but you do not have a definitive diagnosis.
- Still be coming to terms with your child’s new diagnosis.
If you feel your child’s diagnosis is new and that you would benefit from attending, you are welcome to join us. Once you register, we will contact you to better understand your needs.
Key information about our newly diagnosed session:
The session will take place over Zoom and last for approximately one hour.
For more information about the newly diagnosed online support meeting, contact us:
- Email: info@musculardystrophyuk.org
- Call: 0800 652 6352 (Monday to Thursday, 10am to 2pm).
We are here for you from the point of diagnosis and beyond.
What is muscular dystrophy?
Clear and reliable information about what muscular dystrophy is, the different types, and what to expect.
Speak to us
Our helpline provides free information and emotional support to parents and carers of children living with a muscle wasting condition.
Call us on 0800 652 6352 Monday to Thursday 10am to 2pm.
Support for parents and carers
We’re here for your family from the point of diagnosis and beyond.