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Newly diagnosed: Support and information session

A safe and confidential space for people newly diagnosed with a muscle wasting or weakening condition. Led by our trained care and support team alongside professional counsellor Louise Halling.

Sign up for the session

We understand that a diagnosis can change everything and that having access to the right information and advice can make all the difference.

This free information session will cover how we can support you to live well with a muscle wasting or weakening condition. There will also be an opportunity to connect with others in a similar situation.

What you will gain:

An introduction to our support services

  • Our team can help with a range of needs, including understanding a diagnosis, emotional support, learning about local services, benefits and home adaptations and anything else connected to your new diagnosis.
  • We also offer peer support, support groups, information days, webinars and an employability service.
  • Find out how our support can be tailored to you.

Support from counsellor and psychotherapist Louise Halling

  • Louise lives with limb girdle muscular dystrophy and brings both professional expertise and lived experience.

A chance to connect with others

  • Meet others who have also been recently diagnosed and share experiences in a supportive environment.

Who can attend:

We understand that the diagnosis process for muscle wasting and weakening conditions is not as straightforward as it should be.

You may:

  • Have received your diagnosis recently.
  • Have experienced a long and complex diagnostic journey.
  • Have had your diagnosis changed over time.
  • Not have a definitive diagnosis but still be living with a muscle wasting or weakening condition.
  • Still be coming to terms with your diagnosis.

If you feel your diagnosis is still new and that you would benefit from attending, you are welcome to join us. Once you register, we will contact you to better understand your needs.

Key information:

The session will take place over Zoom and last for approximately one hour.

For more information about the newly diagnosed online support meeting, contact us:

We are here for you from the point of diagnosis and beyond.

Details
Date Thursday 27 March 2025 Time 14:30 Location Zoom Sign up for the session
What is muscular dystrophy?

Clear and reliable information about what muscular dystrophy is, the different types, and what to expect.

Speak to us

Our helpline provides free information and emotional support to anyone living with a muscle wasting or weakening condition as well family members, carers and friends.

Call us on 0800 652 6352 Monday to Thursday 10am to 2pm.

Our support services

Connect with peers in the muscle wasting community at our webinars and information days, or join one of our support groups.

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