Viewing 3 posts - 1 through 3 (of 3 total)
  • #193565
    Anyone with EDMD

    Hey i’m 20 years old (M) with Emery-Dreifuss (found out at 3 years old) would like to see if there is some other people with the condition to see how they deal with things, as I know its a rare type and can effect people differently. is there also ways to contact people with the same condition or talk to people who are going through the same thing?

    Mano
    Participant
    Posts: 0
    Joined: 31/03/2021
    #193572
    Reply To: Anyone with EDMD

    Hello and welcome Mano. I am sure someone will come along and be able to give the specific info you are looking for, in the meantime I wonder if you have made contact with this group?

    https://www.facebook.com/groups/EmeryDreifuss/

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #193591
    Reply To: Anyone with EDMD

    Hello and welcome Mano. I am sure someone will come along and be able to give the specific info you are looking for, in the meantime I wonder if you have made contact with this group?

    https://www.facebook.com/groups/EmeryDreifuss/

    Mike

    Thanks i’ll sure have a look at it.

    Mano
    Participant
    Posts: 0
    Joined: 31/03/2021
Viewing 3 posts - 1 through 3 (of 3 total)

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