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Appointments
Hey, hope everyone okay on this grey old day.
Just wanted to compare, if not too nosy, what are everyone’s consultant appointments like? I have this neurology appointment once a year. I have all these things the gp can’t answer and build up over the year and then when I get there it’s really just in and out and I feel like I am such kind of hindrance. is it just me or why am I even going to these appointments? Would I be leaving myself in a bad situation if I didn’t go to them anymore?
Reply To: AppointmentsI don’t see anyone, I’ve sort of given up with the medical profession. Too too often the consultant says “Well, it isn’t really worth your while with these appointments as there is nothing we can do for you, but give us a call if we can help” … First I am
why would I call you if there is nothing you can do … And then I am 
you just want me off your stats.I would suggest writing down your questions and try and remember that the consultant is there for you, put on your bother-boots and bother him/her until you feel you’ve been heard and answered.
Sometimes we have to be a tad Bolshevik and stubborn, rather than placated.
I'm always the animal, my body's the cage
I blog about nothingness www.amgroves.com
Reply To: AppointmentsI don’t see anyone, I’ve sort of given up with the medical profession. Too too often the consultant says “Well, it isn’t really worth your while with these appointments as there is nothing we can do for you, but give us a call if we can help” … First I am
why would I call you if there is nothing you can do … And then I am 
you just want me off your stats.I would suggest writing down your questions and try and remember that the consultant is there for you, put on your bother-boots and bother him/her until you feel you’ve been heard and answered.
Sometimes we have to be a tad Bolshevik and stubborn, rather than placated.
Yeah I meant to write it all down and then work was really hectic and I forgot.
I just wonder why I need to go anymore, I asked a few things and to be honest I felt like with the responses I got I wouldn’t be surprised if when I went out the door the consultant put sunglasses on and said ‘deal with it’ lol. I might just ask if it’s possible I can ring if I a problem like you do, makes more sense to me and less embarrassing.
Reply To: AppointmentsI think we are also suffering because Neuroconsultants are nit really ‘up’ with MD and all its implications
I'm always the animal, my body's the cage
I blog about nothingness www.amgroves.com
Reply To: AppointmentsI agree. There are not many neuroconsultants that have the expertise in MD field as is found with paediatric neuros.
I had a bit of a meltdown after one too many 5 minute consultations – I travelled 2 and half hours for that. After that, things seemed to change.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams
Reply To: AppointmentsI agree. There are not many neuroconsultants that have the expertise in MD field as is found with paediatric neuros.
I had a bit of a meltdown after one too many 5 minute consultations – I travelled 2 and half hours for that. After that, things seemed to change.
Ohhh
2 and a half hours, wow, how come? Actually in asking that I have reminded myself, does anyone know if we are able to request to see a certain consultant? Apparently there is a consultant in Oxford who is really really good. If I am in a different area am I allowed to request to see him? Just curious.
Reply To: AppointmentsI live in Sussex and it’s quite common for us down here to be referred to London hospitals like Kings College or Queens Square. Oxford too have a good reputation as do Newcastle. I think the first step would be to get your GP to make a referral.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams
Reply To: AppointmentsI have only just read this thread. I had a lovely consultant but the last time I saw him was April 2014. I subsequently saw another doctor for MRI results. He then signed me off the books and I’ve not been given any further appointments. My consultant would see me every year and more often if there were things he wanted to investigate. But I think he was on long term sick leave last year and now I don’t expect to see anyone apart from my GP.
Quite honestly, the way I feel at the moment, I couldn’t even think about travelling anywhere to see anyone. I have a lot of pain and just getting from one end of the day to the other is all I can deal with.
Syb
Reply To: AppointmentsI see my Neuro consultant once a year and to be honest, I cant fault the bloke.
hes never lied to me and he openly admitted on the very first day, that I was the first
case of EDMD he had actually seen in reality. so we both came to a decision, that
he along with keeping an eye on me. he would use me as a teaching aid for students.
this has involved students being there during appointments, them examining and asking me
questions at times.
the way I see things is, if the medical profession can use me to speed up treatment
for kids with EDMD. then im all too happy to helpstefan
Reply To: AppointmentsI see my Neuro consultant once a year and to be honest, I cant fault the bloke.
hes never lied to me and he openly admitted on the very first day, that I was the first
case of EDMD he had actually seen in reality. so we both came to a decision, that
he along with keeping an eye on me. he would use me as a teaching aid for students.
this has involved students being there during appointments, them examining and asking me
questions at times.
the way I see things is, if the medical profession can use me to speed up treatment
for kids with EDMD. then im all too happy to help
I agree definitely LittleStef!
I always let them sit in my appointments, had one with about 6 students, but yeah on a serious note anything that helps.
I suppose a lot of us are the same, our consultants don’t know everything and can only keep an eye on us. I just hate the build up of asking my gp stuff over the year and him saying save it for consultant then the consultant rushes me in and out so quick. I know times are bad for the nhs, maybe I am moaning too much. Sometimes I feel really upset and overwhelmed and if I didn’t post somewhere like this I think I’d cry
Thanks for your posts and you experiences
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