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  • #118773
    Appointments

    Hey, hope everyone okay on this grey old day. :wave:

    Just wanted to compare, if not too nosy, what are everyone’s consultant appointments like? I have this neurology appointment once a year. I have all these things the gp can’t answer and build up over the year and then when I get there it’s really just in and out and I feel like I am such kind of hindrance. is it just me or why am I even going to these appointments? Would I be leaving myself in a bad situation if I didn’t go to them anymore?

    croissant
    Participant
    Posts: 32
    Joined: 29/10/2015
    #118778
    Reply To: Appointments

    I don’t see anyone, I’ve sort of given up with the medical profession. Too too often the consultant says “Well, it isn’t really worth your while with these appointments as there is nothing we can do for you, but give us a call if we can help” … First I am :scratch: why would I call you if there is nothing you can do … And then I am :no: you just want me off your stats.

    I would suggest writing down your questions and try and remember that the consultant is there for you, put on your bother-boots and bother him/her until you feel you’ve been heard and answered.

    Sometimes we have to be a tad Bolshevik and stubborn, rather than placated.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #118781
    Reply To: Appointments

    I don’t see anyone, I’ve sort of given up with the medical profession. Too too often the consultant says “Well, it isn’t really worth your while with these appointments as there is nothing we can do for you, but give us a call if we can help” … First I am :scratch: why would I call you if there is nothing you can do … And then I am :no: you just want me off your stats.

    I would suggest writing down your questions and try and remember that the consultant is there for you, put on your bother-boots and bother him/her until you feel you’ve been heard and answered.

    Sometimes we have to be a tad Bolshevik and stubborn, rather than placated.

    Yeah I meant to write it all down and then work was really hectic and I forgot. :oops:

    I just wonder why I need to go anymore, I asked a few things and to be honest I felt like with the responses I got I wouldn’t be surprised if when I went out the door the consultant put sunglasses on and said ‘deal with it’ lol. I might just ask if it’s possible I can ring if I a problem like you do, makes more sense to me and less embarrassing.

    Deal with it

    croissant
    Participant
    Posts: 32
    Joined: 29/10/2015
    #118782
    Reply To: Appointments

    I think we are also suffering because Neuroconsultants are nit really ‘up’ with MD and all its implications

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #118784
    Reply To: Appointments

    I agree. There are not many neuroconsultants that have the expertise in MD field as is found with paediatric neuros.

    I had a bit of a meltdown after one too many 5 minute consultations – I travelled 2 and half hours for that. After that, things seemed to change.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #118789
    Reply To: Appointments

    I agree. There are not many neuroconsultants that have the expertise in MD field as is found with paediatric neuros.

    I had a bit of a meltdown after one too many 5 minute consultations – I travelled 2 and half hours for that. After that, things seemed to change.

    Ohhh :( 2 and a half hours, wow, how come? Actually in asking that I have reminded myself, does anyone know if we are able to request to see a certain consultant? Apparently there is a consultant in Oxford who is really really good. If I am in a different area am I allowed to request to see him? Just curious.

    croissant
    Participant
    Posts: 32
    Joined: 29/10/2015
    #118809
    Reply To: Appointments

    I live in Sussex and it’s quite common for us down here to be referred to London hospitals like Kings College or Queens Square. Oxford too have a good reputation as do Newcastle. I think the first step would be to get your GP to make a referral.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #119145
    Reply To: Appointments

    I have only just read this thread. I had a lovely consultant but the last time I saw him was April 2014. I subsequently saw another doctor for MRI results. He then signed me off the books and I’ve not been given any further appointments. My consultant would see me every year and more often if there were things he wanted to investigate. But I think he was on long term sick leave last year and now I don’t expect to see anyone apart from my GP.

    Quite honestly, the way I feel at the moment, I couldn’t even think about travelling anywhere to see anyone. I have a lot of pain and just getting from one end of the day to the other is all I can deal with.

    Syb

    sybyllascarlett
    Participant
    Posts: 383
    Joined: 07/02/2012
    #119301
    Reply To: Appointments

    I see my Neuro consultant once a year and to be honest, I cant fault the bloke.
    hes never lied to me and he openly admitted on the very first day, that I was the first
    case of EDMD he had actually seen in reality. so we both came to a decision, that
    he along with keeping an eye on me. he would use me as a teaching aid for students.
    this has involved students being there during appointments, them examining and asking me
    questions at times.
    the way I see things is, if the medical profession can use me to speed up treatment
    for kids with EDMD. then im all too happy to help :D

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
    #119353
    Reply To: Appointments

    I see my Neuro consultant once a year and to be honest, I cant fault the bloke.
    hes never lied to me and he openly admitted on the very first day, that I was the first
    case of EDMD he had actually seen in reality. so we both came to a decision, that
    he along with keeping an eye on me. he would use me as a teaching aid for students.
    this has involved students being there during appointments, them examining and asking me
    questions at times.
    the way I see things is, if the medical profession can use me to speed up treatment
    for kids with EDMD. then im all too happy to help :D

    I agree definitely LittleStef! :)

    I always let them sit in my appointments, had one with about 6 students, but yeah on a serious note anything that helps.

    I suppose a lot of us are the same, our consultants don’t know everything and can only keep an eye on us. I just hate the build up of asking my gp stuff over the year and him saying save it for consultant then the consultant rushes me in and out so quick. I know times are bad for the nhs, maybe I am moaning too much. Sometimes I feel really upset and overwhelmed and if I didn’t post somewhere like this I think I’d cry :oops:

    Thanks for your posts and you experiences :)

    croissant
    Participant
    Posts: 32
    Joined: 29/10/2015
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