Viewing 3 posts - 1 through 3 (of 3 total)
  • #176123
    Being a parent with MD

    Hi all,

    I have recently become a parent of two twin boys whilst already having a nearly 5 year old girl. On the past 2 years the MD part of my condition has really kicked in with weak legs a real problem and I’m starting to use a wheelchair and mobility scooter (I’m now 33)

    Would love to hear the stories from other parents who have MD with how they have coped and adapted

    Posts: 0
    Joined: 10/03/2019
    Reply To: Being a parent with MD

    Hello and welcome to the forum. I was diagnosed late in life after my son was, so I probably cannot tell you the sort of stories you may want. I must say that throughout it all, my children have been a lifesaver and a rock in the midst of all that will go on in your MD life. Whilst I cannot begin to imagine the challenges of having twins will bring to your family, they will all be worth it. I will add though that there is not one of my kids and grandkids who have not had a barrel full of laughs riding with me on my scooter. One time it was the only way one of them would go into hospital.


    So many love songs, so little love.

    embayweather embayweather
    Posts: 8
    Joined: 02/11/2015
    Reply To: Being a parent with MD

    Hi. RGwood86

    Not a parent myself but a dedicated aunt. I progressed to a scooter in order to safely keep up with an active 2 year old nephew. that was in my mid 20s.

    Whats your Condition? I have MD rigid spine SEPN1.

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Posts: 1,002
    Joined: 20/09/2010
Viewing 3 posts - 1 through 3 (of 3 total)

You must be logged in to reply to this topic.

Keep in touch
- Enter Your Location -
- or -