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  • #177803
    Breaking news: access to Spinraza

    Hi everyone,

    If you haven’t already seen, there is some amazing news about access to Spinraza, the treatment for SMA.

    You can read all about the news here: https://www.musculardystrophyuk.org/news/news/spinraza-to-be-approved-england/

    The highlight is that NICE, Biogen and NHS England have come to an agreement to make the treatment available for children, young people and adults with SMA Types 1, 2 and 3 through a Managed Access Agreement (MAA). This means that patients will be able to get Spinraza while more long-term data on its effectiveness is gathered.

    :wave:

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #177816
    Reply To: Breaking news: access to Spinraza

    Brilliant news that is long overdue.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #177818
    Reply To: Breaking news: access to Spinraza

    This is fantastic!

    :wave:

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
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