Viewing 5 posts - 1 through 5 (of 5 total)
  • #191838
    Brother with DMD

    Hi to all,

    I am a sister of a brother with DMD. He is 21 y.old now and in a pretty good condition, if I can say that.

    He is a wheelchair user since 2009.
    We’ve noticed that he is having urinary incontinence so if anyone could give any kind of advice I would appreciate.

    Thank you and take care,

    Sofija :new:

    Sister
    Participant
    Posts: 0
    Joined: 21/12/2020
    #191839
    Reply To: Brother with DMD

    Hi Sofija

    Welcome to both yourself and your Brother to Talkmd.

    Our first advice is always seek advice from your GP for any sudden change.

    This likely is a MD progression but us with MD do get other normal stuff too. I would first ask GP to test urine for infection as this is big factor in sudden loss of ability to hold urine. Important to see GP as could be few things that will need monitored. Prostrate. Diabetes, kidney stones blocking, retention or as above your average urine infection.

    From General MD point of view. It could be new inability to hold on. Or could also be that urine retention is a factor. This is when you don’t void completely then it sneaks up on you when your unaware creating urgency or incontinence. The bladder in effect gets overfull. this can be apparent if flow bit stop start like.

    Your GP will be able to refer to a continence care nurse in the meantime for practical help to access pads to keep dry and prevent issues with sores.

    I have been in this very situation myself and it is very tempting to reduce fluid intake but this can make it worse and make poorly in many other ways too. So hydration is very very important.

    take care

    Cat

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #191840
    Reply To: Brother with DMD

    Omg sorry my english is not so good obviously. It is not problem with incontince but constipation :lol:

    So it is totally opposite thing.

    Sister
    Participant
    Posts: 0
    Joined: 21/12/2020
    #191841
    Reply To: Brother with DMD

    oops lol

    Advice very similar. Constipation is massive issue with anyone in wheelchair, reduced mobility and with MD. Again hydration important.

    Constipation is tricky to suggest any remedies as its very personal. And depends on what else your taking. Again any change to bowel habits needs your GPs input. I myself have slow gut motility due to my MD(slow food transit)

    Massaging tummy with orange oil can help encourage transit. You massage in circular movement from the right side under rib along in a straight line to the left then downwards. Probiotic drinks can help.

    GP may suggest stool softeners to aid movement. Or even refer to a dietician to see if anything in diet causing issue. I wouldnt buy any over counter items till you talk to GP.

    take care
    Cat

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #191842
    Reply To: Brother with DMD

    Thank you Cat! Appreciate your effort.Best regards!

    Sister
    Participant
    Posts: 0
    Joined: 21/12/2020
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