February 19, 2018 at 3:46 am #154532Do I have kids?
I don’t know where else to post a question like this. My husband and I really want to have our own kids. I recently did a carrier test for DMD since my cousin died of the disease a few years ago. I tested positive to carrying the disease. I have no idea what to do, I know I have adoption and IVF as options but my husband just wants to risk the 25% chance of having a boy with DMD. I’m not sure what to do? If we try and have a baby that is affected by DMD I feel like it might be my fault. I’m so lost in all of it.mab2016ParticipantPosts: 0Joined: 19/02/2018February 19, 2018 at 6:31 pm #154544Reply To: Do I have kids?
HI and welcome to the forum
Cant offer any guidance or advice other than have you heard of form of IVF called PGD. it may offer another option on inheritance.
If you highlight your area we might be able to put you in touch with parent groups etc
"""""""What doesn't kill you makes you stronger""""""CatModeratorPosts: 1,002Joined: 20/09/2010February 19, 2018 at 6:50 pm #154547Reply To: Do I have kids?
As catatude said, it would be wrong of us to offer advice but there are places to go for support.
When you got tested were you offered genetic counselling afterwards? If you haven’t already come across this, there is some info on NHS genetic services
This includes info on pgd as mentioned above. I second catatude’s suggestion of contacting regional support as well.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adamssar78ModeratorPosts: 2,246Joined: 05/03/2015January 9, 2020 at 6:04 am #184416Reply To: Do I have kids?
It might seem unfair to comment here, being the father of 17 and 14 yo daughters but I will do so regardless, intending no offence.
My then wife and I didn’t know I had Becker MD when the first daughter was born, but knew a year before the second. Becker, along with it’s uglier companion, namely Duchenne MD is passed between mother and son, therefore any daughters fathered by me would be BMD carriers, any sons unaffected.
All I can say is, that if I had known there was a chance of bringing a BMD suffering child into the world, I absolutely wouldn’t have wished to do so.
My opinions are as they are, I can’t speak for others.ranaldParticipantPosts: 747Joined: 05/09/2010
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