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  • #154532
    Do I have kids?

    I don’t know where else to post a question like this. My husband and I really want to have our own kids. I recently did a carrier test for DMD since my cousin died of the disease a few years ago. I tested positive to carrying the disease. I have no idea what to do, I know I have adoption and IVF as options but my husband just wants to risk the 25% chance of having a boy with DMD. I’m not sure what to do? If we try and have a baby that is affected by DMD I feel like it might be my fault. I’m so lost in all of it.

    mab2016
    Participant
    Posts: 0
    Joined: 19/02/2018
    #154544
    Reply To: Do I have kids?

    HI and welcome to the forum

    Cant offer any guidance or advice other than have you heard of form of IVF called PGD. it may offer another option on inheritance.

    If you highlight your area we might be able to put you in touch with parent groups etc

    regards

    Catatude
    MOD

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #154547
    Reply To: Do I have kids?

    Hi mab2016

    As catatude said, it would be wrong of us to offer advice but there are places to go for support.

    When you got tested were you offered genetic counselling afterwards? If you haven’t already come across this, there is some info on NHS genetic services

    This includes info on pgd as mentioned above. I second catatude’s suggestion of contacting regional support as well.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #184401
    Reply To: Do I have kids?

    You can consider IVF and have the embroys genetically tested for DMD – that way you can have a family without risk of DMD

    cloudypotato
    Participant
    Posts: 0
    Joined: 08/01/2020
    #184416
    Reply To: Do I have kids?

    It might seem unfair to comment here, being the father of 17 and 14 yo daughters but I will do so regardless, intending no offence.

    My then wife and I didn’t know I had Becker MD when the first daughter was born, but knew a year before the second. Becker, along with it’s uglier companion, namely Duchenne MD is passed between mother and son, therefore any daughters fathered by me would be BMD carriers, any sons unaffected.

    All I can say is, that if I had known there was a chance of bringing a BMD suffering child into the world, I absolutely wouldn’t have wished to do so.

    My opinions are as they are, I can’t speak for others.

    ranald
    Participant
    Posts: 747
    Joined: 05/09/2010
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