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  • #74085
    East of England meeting 1st December 2012

    Anyone going to this one in Cambridge on Thursday?

    Should be there, all being well…

    petered
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    #83112
    Re: East of England meeting 1st December 2012

    Damn, they always bung these things at thr wrong tie of year for me!

    If you are going Petered, I’d love to know if things are in-place at the Norfolk and Norwich Hospital for the new neuro-peep.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    #83114
    Re: East of England meeting 1st December 2012

    @amgmod wrote:

    If you are going Petered, I’d love to know if things are in-place at the Norfolk and Norwich Hospital for the new neuro-peep.

    I’m certainly intending to be there. Barring unexpected events or breakdowns (of either equipment or me!). I’ll try and report back if I can.

    petered
    Participant
    Posts: 564
    Joined: 24/01/2011
    #83113
    Re: East of England meeting 1st December 2012

    @petered wrote:

    I’m certainly intending to be there. Barring unexpected events or breakdowns (of either equipment or me!). I’ll try and report back if I can.

    Thanks, we look forward to your report

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    Joined: 05/03/2015
    #83118
    Re: East of England meeting 1st December 2012

    Unfortunately, due to what might politely be called a mix-up by the people with whom I booked my transport to the event, I’m going to have to leave early. So it may be a somewhat truncated report…

    petered
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    Joined: 24/01/2011
    #83115
    Re: East of England meeting 1st December 2012

    @petered wrote:

    Unfortunately, due to what might politely be called a mix-up by the people with whom I booked my transport to the event, I’m going to have to leave early. So it may be a somewhat truncated report…

    No problemo – shame about the transport, the conference will just have to talk quicker, lol.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    Joined: 05/03/2015
    #83117
    Re: East of England meeting 1st December 2012

    Not sure how much I can report that will be of any use to anyone here…

    The problem was that most of the day ended up being devoted to the Neuromuscular Workshop of the East of England NHS Specialised Commissioning Group. All doubtless very good people, but it was, I’m afraid, a meeting chock full of jargon and too many people all saying the same thing. Some feedback was given which hopefully may help the SCG get things right for those of us with neuromuscular conditions, but my feeling is that this was really a meeting for the professionals.

    In the circumstances, I’m not sure it was the best of ideas for the MDC meeting to be tacked on to the end of the other meeting, and use the same hall. By the time the others had left, the MDC meeting started rather late, and then my transport arrived to cart me away and I had to disappear. I know some others had to leave before the end too.

    However, before leaving I was introduced to the two lovely new regional Neuromuscular Care Advisors who started work just a few days ago, one covering Norfolk, Suffolk and Cambs, and the other looking after Essex, Herts, Beds, Luton and Peterborough. As you can tell from that list, they both have a massive amount of territory to cover, and will obviously need to take a while to get settled in, but I’m sure they’ll be a brilliant asset to us in this region. Well done to all involved in getting this service going once again!

    petered
    Participant
    Posts: 564
    Joined: 24/01/2011
    #83116
    Re: East of England meeting 1st December 2012

    @petered wrote:

    However, before leaving I was introduced to the two lovely new regional Neuromuscular Care Advisors who started work just a few days ago, one covering Norfolk, Suffolk and Cambs, and the other looking after Essex, Herts, Beds, Luton and Peterborough. As you can tell from that list, they both have a massive amount of territory to cover, and will obviously need to take a while to get settled in, but I’m sure they’ll be a brilliant asset to us in this region. Well done to all involved in getting this service going once again!

    Woohoo, this was the news I was wanting to hear :) I shall have to seriously se about getting to see the CA next year.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
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    Joined: 05/03/2015
    #83119
    Re: East of England meeting 1st December 2012

    @amgmod wrote:

    Woohoo, this was the news I was wanting to hear :) I shall have to seriously se about getting to see the CA next year.

    Details of the two lovely new people are here:
    http://www.muscular-dystrophy.org/how_we_help_you/care_and_support/care_advisors

    petered
    Participant
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    #83120
    Re: East of England meeting 1st December 2012

    Thank you.

    I must have got me muggins muddled, thought one was going to be based at the Norfolk n Norwich … oh well, guess our cart track road system does put many off.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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    Joined: 05/03/2015
    #83121
    Re: East of England meeting 1st December 2012

    @amgmod wrote:

    I must have got me muggins muddled, thought one was going to be based at the Norfolk n Norwich … oh well, guess our cart track road system does put many off.

    There is still another one post to be filled, I think it may be being advertised at the moment. Where they’ll be based when all three are in post, I’m not sure whether it’s entirely been decided yet…

    But if I see a likely-looking horse and cart going past my window on the way out into the sticks, I’ll let you know. They’ll probably get there eventually, as long as they avoid the A14.

    petered
    Participant
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    Joined: 24/01/2011
    #83122
    Re: East of England meeting 1st December 2012

    @petered wrote:

    But if I see a likely-looking horse and cart going past my window on the way out into the sticks, I’ll let you know. They’ll probably get there eventually, as long as they avoid the A14.

    Best avoid all A-roads, them there new metal people moving carts leave uncountry smells. :lol:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
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