English Wheelchair campaign in conjunction with MD

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  • #75626
    English Wheelchair campaign in conjunction with MD

    mobile deck chairs

    http://www.bbc.co.uk/news/uk-33598691

    thought I would link this. although youve probably seen some of the emails from our very own MD Tanvi Vias (sorry if I speld names wrong :oops: )

    Tanni Grey and Tanvi are heading a thingy to improve wheelchair services in England. looking forward to seeing the progress of a user lead scheme.

    Im scotland based, hoping any enlightenment and progress will reach us up north as well. I have a NHS WESTMARC funded chair which is nearly OK. its an invacare sturdy workhorse chasis, great battery range and curb climber but the controls arent great and the seating is horribly uncomfortable and not very accessible. like 99% of NHS provided items they are “carer led” I cant independently use chair as arms are fixed which ultimalty means that I cant go out alone as I cant transfer to toilet. I asked the provider about this hoping for flip up or swing away arms and the answer was that they order 1000s of the same chair and they need to be used up before any alternatives will be considered.

    we spend all day in what is essential a mobile deck chair, I would like to see them sit in one for a length of time in a fixed seat that doesnt adjust in angle or go over speed bumps in the back of a car on a bit of canvas stretched across two metal poles.

    sorry ranting now.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
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    #96720
    Re: English Wheelchair campaign in conjunction with MD

    I agree, for those of us in chairs for great periods of time, it is so stiffening and awkward and uncomfortable.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
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    #96721
    Re: English Wheelchair campaign in conjunction with MD

    Hi, my experience of getting a wheelchair has been mixed.
    Initially it was all plain sailing then i required extra funding which i was awarded by the JP trust.
    Thats when it all started to go wrong due to red & incompentence within the NHS.
    Its finally been sorted but i’m still awaiting my wheelchair as it is in the que to be built 10 months on.
    Hopfuly it wont be too long now.

    Is there not a supplier for cushion inserts for wheelchairs? ie made from memory foam like those which children have in car seats with support areas?
    If not i’m going to make myself one as I’m in enough pain already.
    I’m relieved but nervous of finally being in a wheelchair at 44, i was surprised that there was no counselling or emotional help with the transition.
    I hope that Tanny gets things sorted for the better for everyones sake and if she needs any help theres nothing wrong with my very vocal scouse gob lol!

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
    #96722
    Re: English Wheelchair campaign in conjunction with MD

    I had to wait for a memory foam cushion for seven weeks & when I chased it they said that the person assigned to me had left & they had to start the order over as they couldn’t find a trace of it.

    Then it arrived & was no good, way too deep & it made me sit proud & top heavy.

    So, we’ve had to start over & I’m waiting, in the middle of second week of a supposed three. They’re made to order & mine was arranged via the wheelchair service but, is supplied from NRS.

    I had a really good relationship with the wheelchair service, when it was based in Aylesbury (where I live). Then they moved & merged the whole of Bucks services to operate out of just one place, Amersham, & it’s been a nightmare experience ever since. Not enough staff, overworked & very low moral.

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
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    Joined: 29/10/2010
    #96723
    Re: English Wheelchair campaign in conjunction with MD

    Hi! All I found this online some may be interested in reading it;

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
    #96724
    Re: English Wheelchair campaign in conjunction with MD

    id be happy, just to get a ramp installed or a move :(

    stefan

    littlestef
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    Joined: 04/10/2011
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