December 28, 2020 at 8:16 pm #191913Exercise
Eurgh. Exercise. I try to walk most days, although maybe i should call it waddling! I stooped being able to run or do anything in the gym a decade ago. I am still ambulatory. I havnt been able to swim due to covid and that was my go to. What I’m finding is that anything I do now that stretches my thighs/legs leaves my legs wobbly and unsteady. It makes them shake. This can be….bending down to unpack shopping and stretching myself over the bags etc, walking up an incline, and….sex is a big one! Makes me weak at the knees in more ways than one! Perhaps this is just a progression again? I’m noticing i can’t get out of the car without pushing with my hands and to get up from the sofa I am instinctively tucking to heels up against it and using my hands to push up. So, its progressing. Any exercise suggestions? I did a seated yoga class before covid, which was hard but very good!I read an article telling me that exercise for lgmd2i (my type) is beneficial and won’t cause damage….it doesn’t feel that way though!and I’m not doing taxing exercise, just a gentle stretch can leave me quite wobbly.
PipDecember 28, 2020 at 9:25 pm #191915Reply To: Exercise
Hi pip, I’m having the exact same problem, I have opmd. I have looked into exercise for md, what I found was not too do any bouncing movement and only exercise for 10 minutes at a time and only every other day. And build to 3 lot’s of 10 during those days, only problem is pain the next couple of days. I would be good if we could get physio but that won’t be happening any time soon 57 trapped in the body of a 97 year oldCrazy catParticipantPosts: 0Joined: 27/01/2019December 28, 2020 at 9:38 pm #191918Reply To: Exercise
Breathing exercise, tera band stretches and some seated or standing balance board work are very good for protecting and maintaining muscle tone. All low impact.
Many useful youtube videos added over lockdown. Yoga. Wheelchair exercise. Breathing and meditation.
I bought a electric assisted exercise bike to carry on with my gym programme at home. Bike takes most of resistance out of peddling letting me work out harder if I can or work on passive rotations for joints.
"""""""What doesn't kill you makes you stronger""""""December 29, 2020 at 12:40 pm #191922Reply To: Exercise
I believe that there are some exercise videos on Youtube produced by the physios of the Neuromuscular Centre in Cheshire. I have not seen them myself though. Anything more than about ten minutes leaves me tired and gasping for breath so I too am not keen on exercise I am afraid. I do get lots in normal day to day things and I also have one of those exercise bike thingies like Cat that can keep the joints working a little bit longer.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015December 29, 2020 at 4:32 pm #191923Reply To: Exercise
Above is videos by Marina Di Marco, Principal Neuromuscular Physiotherapist in Glasgow demo straitening general stretching’s and advise for MD. Marina is the Neuro Physio for Scotland and has featured in a few videos for MDUk and supporting other muscle charities.
"""""""What doesn't kill you makes you stronger""""""December 29, 2020 at 11:12 pm #191929Reply To: Exercise
Cat- I didnt know about electric assisted exercise bikes until you mentioned them. Have just had a Google. So, they’re not the same as normal exercise bikes? Do they move and take your legs with them?December 30, 2020 at 11:57 am #191930Reply To: Exercise
Yes they passively assist the rotations. The better bikes allow you to take over or rest while the machine works your legs.
My home machine is from a company called Reviber and ordering direct I was able to get the Vat off due to it being for a disabled person.
The non electric ones tend to be heavy to peddle. or if light weight machines, where they may peddle easier they need someone to hold and stop it from moving away.
My Reviber has speed options as well as forward and reverse peddle. More expensive machines like motomed can alter the resistance of the peddling to super light to a more intense workout. you can also use with power off
"""""""What doesn't kill you makes you stronger""""""
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