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  • #75662

    I was just curious whether anyone else undertook any regular exercise and if they felt any significant benefit? I myself do cardiovascular exercise and some modest weight lifting, but am unsure as to if it is helping me or causing me more problems. I suffer from chronic fatigue and consequently am very tired simply going about my affairs for example attending college and just existing is a major effort. I’m ambulant, but my legs ache the vast majority of the time even after walking a short distance. I’m hoping by exercising them this will delay an further deterioration etc.
    I would be much obliged if anyone else could get back to me with any pertinent information or perspectives.
    Thank you.

    Posts: 14
    Joined: 16/08/2013
    Re: Exercise

    Hi Flynn,

    I can understand your dilemma. I think quite a few of us here have wondered the same thing: do we exercise to keep the muscle strength we have or is exercising not beneficial when we’re already weak and tired out?

    My own experience is all I can tell you about. I have had a little exercise regime for 40 years. That is, from the time I was diagnosed until now. The exercises have changed over the years according to my ability and now I do very little compared to what I did to start with, but these days I am entirely wheelchair-dependent and my back is weak. I have had input from physiotherapists at various times and there have been times when I’ve had to push myself to do my exercises but I’ve always had that nagging thought at the back of my mind that if I stop then I’ll regret it.

    I think only you can decide what’s best for you. My advice would be to ask a professional for their opinion [GP, consultant, physiotherapist for example] especially as you say it is tiring for you just to get through a normal day’s activities. You don’t want to wear yourself out any more than you already are by lifting weights if ultimately, that might not help with your condition. Maybe there are specific exercises you can do that won’t tire you but will maintain strength and/or flexibility, but only a physiotherapist can help here.

    best wishes,


    Posts: 383
    Joined: 07/02/2012
    Re: Exercise

    Hi Flynn,

    I exercise regularly at a gym, doing some cardio and light resistance. The main advice I’ve been given is to not overdo it, and that it shouldn’t be uncomfortable or painful.

    Muscular Dystrophy UK have published these Exercise guidelines which I find useful.

    Posts: 5
    Joined: 05/02/2015
    Re: Exercise

    I exercise every day, heres a run down of my routine. walk to kitchen (cardio), make a brew (strength training).
    take brew in room (cardio and balance). sit down on sofa, lift remote and drink brew (hand eye coordination training) :neener:


    Posts: 526
    Joined: 04/10/2011
    Re: Exercise

    :Post: :rollover: :Post:

    I'm always the animal, my body's the cage

    I blog about nothingness

    Posts: 4,751
    Joined: 05/03/2015
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