Fresh blood…newbee joins

Viewing 20 posts - 1 through 20 (of 25 total)
  • #73875
    Fresh blood…newbee joins

    HEY EVERYONE

    Sorry if i’ve posted this in the wrong section. So i’m 22, female and from London. I don’t have muscular dystrophy but I have charco-mariet-tooth disease which falls under the umbrella of muscular dystrophy but it is not severe. I’ve joined this forum as the ones for CMT sufferers don’t seem very active. Although saying that I only thought to join them this morning haha i’m impatient! Erm I have tended to isolate myself my whole life since leaving school and stuggle to make connexions since I rarely ever go out on my own.

    I’d really like to talk to people that can emphasise with what it’s like to feel so tired all the bloody time! It would be nice to make some friends whether that be online or meeting up in person potentially.

    If you’d like to talk sometime feel free to PM me…happy to talk about anything

    Thanks for reading!

    Onlyhuman x :D

    Onlyhuman
    Participant
    Posts: 5
    Joined: 13/08/2011
    #81443
    Re: Fresh blood…newbee joins

    Welcome Onlyhuman :D

    Glad you’ve found us!

    This is a pretty active forum and we do like to chat/discuss/rant/share a fair bit :lol:

    Best Wishes

    Sarah

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #81444
    Re: Fresh blood…newbee joins

    Hi Welcome,

    Theres plenty of action here :D ;)

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #81445
    Re: Fresh blood…newbee joins

    Welcome Only Human,

    We do regard CMT as a fully fledged member of Muscular Dystrophy.

    There are so many common factors you will find with all the
    other forms of MD, the subjects we discuss will be of great
    relevance. I remember looking up on our main MDC site CMT
    so we must have had posters with that condition.

    A lot of the time we just chat and chill and share things
    like Pet Photos. The great thing is we are talking to
    people who do understand.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #81446
    Re: Fresh blood…newbee joins

    Thanks for all the replies. Really appreciate it and nice to hear from understanding people. That’s probably the hardest thing to find in friends i.e. they can emphasise but never truely understand where i’m coming from or why I can’t do certain things. It’s not their fault ofcourse but nice to be here anyway and nice of you guys to welcome me :Dx

    Onlyhuman
    Participant
    Posts: 5
    Joined: 13/08/2011
    #81447
    Re: Fresh blood…newbee joins

    What up! Welcome Onlyhuman. My name is Natalie, I am 23 and live in Essex. :-)

    skel2
    Participant
    Posts: 117
    Joined: 21/07/2011
    #81448
    Re: Fresh blood…newbee joins

    @skel2 wrote:

    live in Essex. :-)

    Me too! :)

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #81449
    Re: Fresh blood…newbee joins

    Yay! Thats wicked Vicki! :D

    skel2
    Participant
    Posts: 117
    Joined: 21/07/2011
    #81450
    Re: Fresh blood…newbee joins

    @sar78 wrote:

    Welcome Onlyhuman :D

    Glad you’ve found us!

    This is a pretty active forum and we do like to chat/discuss/rant/share a fair bit :lol:

    Best Wishes

    Sarah

    Yeap there is usually something were all gabbing about on here :lol: and if not start something!

    Welcome welcome :D

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #81451
    Re: Fresh blood…newbee joins

    hello all the new peeps

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #81452
    Re: Fresh blood…newbee joins

    Hi, I am a newbie too & have CMT. I can totally relate to the isolation & being knackered all the time lol…it’s time to change, so thought I would join the MD Group for support & hopefully meet some lovely people.
    I’m going shopping for some new high-top trainers or boots today to try & hide my new orthotics, which I never wear because I feel embarrassed – silly I know as they mean I can walk so much further than just down the street! ;p I would love to embrace CMT & stop hiding it and start living life to the max again :)
    Hope you are all well & would love to hear from you :ty:

    Mrs J
    Participant
    Posts: 3
    Joined: 27/09/2015
    #81453
    Re: Fresh blood…newbee joins

    :welcome:

    Hello there Becky, there are several me,bees here with CMT.

    It is not silly being embarrassed by the changes we have to adapt to. It takes time, something we have plenty of sometimes. I have always hated shoe shopping, still do.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #81454
    Re: Fresh blood…newbee joins

    Hi Becky

    :welcome:

    Glad you’ve found us and we look forward to hearing more from you. Feel free to ask questions, have a rant, share tips or join our off topic chats. This forum has many purposes, happy posting :D

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #81455
    Re: Fresh blood…newbee joins

    Come in & know me better man !

    It’s from the Muppet Christmas carol & I’ve always wanted to say it :LOL:
    https://www.youtube.com/watch?v=BwaCN-OETdQ

    :welcome:

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #81456
    Re: Fresh blood…newbee joins

    hELLO :welcome:

    weeble
    Participant
    Posts: 44
    Joined: 23/09/2010
    #81457
    Re: Fresh blood…newbee joins

    hey newbie person. welcome to our corner of madness. straight jackets on left. bring your own crayons love :D

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
    #81458
    Re: Fresh blood…newbee joins

    Welcome newbies! I know how you feel especially as a young woman ( I was young once)with a debilitating condition.
    My daughter has my condition too Wichita as others on here has similar problems.
    She is 18 & keeps trying to go clubbing lol! Dance like she used to but she falls & collapses so they think that she is very drunk lol!
    Don’t give up trying to live life to the max as you only get one!
    I tell her & don’t worry about was others think, they’ll get there (like a 90yrd old) in the end it may just take them seventy years lol!
    Mx

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
    #81459
    Re: Fresh blood…newbee joins

    Hi guys, thank you for all the lovely welcome messages & it’s great to know there are people out there who understand what I’m talking about :D I would love to just get back out there exploring new things & places & doing what I can & not worrying about what I can’t.

    Things are looking up though & joining this forum is part of getting that happy bubbliness back :LOL: It’s time to toughen up! :)

    So big hugs to everybody & hope you are doing well. Would love to hear from you & offer my support back :wave:

    Mrs J
    Participant
    Posts: 3
    Joined: 27/09/2015
    #81461
    Re: Fresh blood…newbee joins

    :waving: :waving:

    Hello becky

    Welcome back … It does take time to adjust to changes. Hope your bubbliness comes back quickly :yes:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #81460
    Re: Fresh blood…newbee joins

    Hi AMGmod, thank you so much. It’s lovely to be back on here with such fab people ;)

    Mrs J
    Participant
    Posts: 3
    Joined: 27/09/2015
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