October 22, 2015 at 9:35 am #81462Re: Fresh blood…newbee joins
Sorry if i’ve posted this in the wrong section. So i’m 22, female and from London. I don’t have muscular dystrophy but I have charco-mariet-tooth disease which falls under the umbrella of muscular dystrophy but it is not severe. I’ve joined this forum as the ones for CMT sufferers don’t seem very active. Although saying that I only thought to join them this morning haha i’m impatient! Erm I have tended to isolate myself my whole life since leaving school and stuggle to make connexions since I rarely ever go out on my own.
I’d really like to talk to people that can emphasise with what it’s like to feel so tired all the bloody time! It would be nice to make some friends whether that be online or meeting up in person potentially.
If you’d like to talk sometime feel free to PM me…happy to talk about anything
Thanks for reading!
Hello Only human, hope you are ok? you finding the forum useful.
AndyAndyWheelsParticipantPosts: 5Joined: 22/09/2015November 12, 2015 at 1:04 pm #103347Reply To: Fresh blood…newbee joins
Hi Becky, and welcome. Never ever give up fighting to be who and what you want to be, because you can get there in the end. If you give up fighting for what you want you admit defeat and you are far too young for that. Even now, as old as I am, I still fight to be what I want to be despite odds stacked against me. In some respects I quite enjoy the battles with those who feel I should give up and be more relaxed, and accept what I can and cannot do. Why should I accept it? Dont you either! Live your life to the full
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015January 25, 2019 at 12:37 pm #174930Reply To: Fresh blood…newbee joins
Welcome back. I am still fighting, it seems with everything. From my chicken in the morning (who is really grumpy) to medical professionals everything is a battle. Please do stay longer and contribute lots. We wold all love to hear how your are getting on fighting CMT.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015
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