November 21, 2017 at 2:22 pm #152891Grants/Housing Adaptations
I’m sure this topic has already been touched on, but wonder if someone could help.
I was diagnosed in Jan with LGMD type 2B/Miyoshi. I have recently bought my first home and moved in, in June. My main difficulty is getting up and down the stairs at the moment, it’s very achievable, but without a handrail, can be a real task.
I have a bannister going up the one side of the stairs, so use this to pull me up, but on days where I am more lethargic, it can take a lot of effort still. So I would like another handrail erecting on the wall side of the stairs. Is this something that i can get help with financially to have done? Where do i start in getting such help?
Jonno.Jonno118ParticipantPosts: 0Joined: 08/02/2017November 22, 2017 at 12:27 pm #152913Reply To: Grants/Housing Adaptations
Hello and welcome to the forum Jonno. I has precisiely that problem some years ago. The local council was able to do this via recommendation from the OT. Please do get in touch with Occupational Therapy as soon as you can to seek their advice and assistance.
I should add though that less than a year later I had to have it removed as I needed a stair lift by then. Sadly they would not fund that item and I havd to get my dying mum to give me the money to get one put it
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015December 9, 2017 at 4:35 pm #153349Reply To: Grants/Housing Adaptations
I asked my doctor to refer me to O.T. as I was struggling with stairs and also getting in and out of bed. Eventually a very helpful young lady arrived. She assessed me and arranged for me to have a banister put on the other side of the stairs, so I have one each side now and also a pieces of equipment which fits under my mattress near the top of the bed. This is brilliant to grab hold of to pull myself up. Now I am in the system apparently I can contact them again if the need arises. It cost nothing.RitaParticipantPosts: 0Joined: 31/08/2017December 10, 2017 at 12:39 pm #153353Reply To: Grants/Housing Adaptations
Depending on your financial assessment it does indeed cost you nothing, budifferent local authorities seem to have different views about that. However, it is really good news for you and I am sure makes a huge difference for you, I know it did for me when I had one fitted.
I would encourage you to keep in touch with OT, as they can be an invaluable source of help and advice.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015December 12, 2017 at 1:19 pm #153398Reply To: Grants/Housing Adaptations
Sorry you have these problems.
Just like the other posters I do strongly suggest getting the
advice of the O.T. (Occupational Therapy) people. They are totally
the experts and they will also know if you can get help with
the cost. Often they just supply the smaller items free of
charge especially if there is a Safety concern.
They gave me advice on stairlift and immediately supplied
“triple-anchored” Medway bannisters.
If you are having problems with stairs you will also
need advice on other items. Rita above mentioned
something like a “Bed Leaver”, but there are many
Some areas you can still just request an O.T. assessment.
"Even if you are not paranoid, it does not mean they are not out to get you!".taungfoxParticipantPosts: 4,630Joined: 27/09/2010
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