Viewing 5 posts - 1 through 5 (of 5 total)
  • #152891
    Grants/Housing Adaptations

    Hi all,

    I’m sure this topic has already been touched on, but wonder if someone could help.

    I was diagnosed in Jan with LGMD type 2B/Miyoshi. I have recently bought my first home and moved in, in June. My main difficulty is getting up and down the stairs at the moment, it’s very achievable, but without a handrail, can be a real task.

    I have a bannister going up the one side of the stairs, so use this to pull me up, but on days where I am more lethargic, it can take a lot of effort still. So I would like another handrail erecting on the wall side of the stairs. Is this something that i can get help with financially to have done? Where do i start in getting such help?

    Thanks
    Jonno.

    Jonno118
    Participant
    Posts: 0
    Joined: 08/02/2017
    #152913
    Reply To: Grants/Housing Adaptations

    Hello and welcome to the forum Jonno. I has precisiely that problem some years ago. The local council was able to do this via recommendation from the OT. Please do get in touch with Occupational Therapy as soon as you can to seek their advice and assistance.
    I should add though that less than a year later I had to have it removed as I needed a stair lift by then. Sadly they would not fund that item and I havd to get my dying mum to give me the money to get one put it

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #153349
    Reply To: Grants/Housing Adaptations

    I asked my doctor to refer me to O.T. as I was struggling with stairs and also getting in and out of bed. Eventually a very helpful young lady arrived. She assessed me and arranged for me to have a banister put on the other side of the stairs, so I have one each side now and also a pieces of equipment which fits under my mattress near the top of the bed. This is brilliant to grab hold of to pull myself up. Now I am in the system apparently I can contact them again if the need arises. It cost nothing.

    Rita
    Participant
    Posts: 0
    Joined: 31/08/2017
    #153353
    Reply To: Grants/Housing Adaptations

    Depending on your financial assessment it does indeed cost you nothing, budifferent local authorities seem to have different views about that. However, it is really good news for you and I am sure makes a huge difference for you, I know it did for me when I had one fitted.
    I would encourage you to keep in touch with OT, as they can be an invaluable source of help and advice.

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #153398
    Reply To: Grants/Housing Adaptations

    Hi Jonno,

    Sorry you have these problems.

    Just like the other posters I do strongly suggest getting the
    advice of the O.T. (Occupational Therapy) people. They are totally
    the experts and they will also know if you can get help with
    the cost. Often they just supply the smaller items free of
    charge especially if there is a Safety concern.

    They gave me advice on stairlift and immediately supplied
    “triple-anchored” Medway bannisters.

    If you are having problems with stairs you will also
    need advice on other items. Rita above mentioned
    something like a “Bed Leaver”, but there are many
    options.

    Some areas you can still just request an O.T. assessment.

    Good luck.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
Viewing 5 posts - 1 through 5 (of 5 total)

You must be logged in to reply to this topic.

Keep in touch