Viewing 20 posts - 1 through 20 (of 24 total)
  • #75007
    Gynae probs

    Am having some gynae issues and would appreciate any insights or thoughts on the following:

    Since last September I have had significant blood loss and became very anaemic. Without going into too many details it got so bad in January and I went into shock and nearly passed out. After this, I was given norethisterone to stop things in the short term and then my GP suggested trying Depo Provera injection. Another 5 weeks on and it seemed to work and I had nothing for 8 weeks. Now I feel back to square one, the injection is not keeping things at bay and am back on the iron tablets.

    I am due to go to my local hospital and I understand they will do a scan – we already know I have a fibroid. My concern is what can be done if drugs cannot stop it. I am so weak, have almost constant cramps and I am noticing a new type of stiffness emerging in my back and shoulders plus shortness of breath. I have found no info on gynae problems in people with MD. Surgery would be exceedingly difficult perhaps impossible given my shape and anaesthetic is a risk.

    Any thoughts ladies?

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90904
    Re: Gynae probs

    Could you have a coil fitted (Mirena) to ease symptoms, I’m currently thinking about this it should ease things or stop it altogether.

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #90902
    Re: Gynae probs

    Unfortunately my GP says my pelvis is too tilted for this to be possible.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90903
    Re: Gynae probs

    What about the implant that goes in your arm, would that be any good?

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #90905
    Re: Gynae probs

    I knew a lady who had to have a hysterectomy due to having problems with her periods. I know it sounds drastic but it may be your final option.

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
    #90906
    Re: Gynae probs

    I think this would be the usual course of action but there is the anaesthetic issue as well as the recovery I would be concerned about. I’m going to see what the consultant thinks. As usual, the medicos don’t really know what to do with me!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90907
    Re: Gynae probs

    @sar78 wrote:

    I think this would be the usual course of action but there is the anaesthetic issue as well as the recovery I would be concerned about. I’m going to see what the consultant thinks. As usual, the medicos don’t really know what to do with me!

    I would have the same concern as you regarding the hysto, it all depends on what type they can do. If it is the full cut open jobbie the standard recovery time is 6-12 weeks, who knows with our issues how long it would take. Sometimes it can be done keyhole fashion and while it is still a major op, the recovery time is much quicker and there is less infection risk.

    My pelvic tilt means a nightmare when it comes to the dreaded smear test time. I have to be on my side and have someone hold onto my leg swaggering about in the air.

    Have hormone tablets worked at all [HRT, birth control]? Vic’s idea of the implant may be a way to go.

    No medico knows what to do with us, even the expert ones :lol:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #90908
    Re: Gynae probs

    Have tried the three monthly injection and my GP mentioned the mini pill but wants me to see the consultant first. At the moment I’m on a ten day course of the progesterone only pill norethisterone (think its known as the holiday pill?) and it has helped a little but not as effective as before. I’ll let you know how I get on next week.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90909
    Re: Gynae probs

    I hope Norethisterone is of some help…I found it made me bleed more. Mirena coil is better than conventional coils. You could also look at vaginally assisted hysto similar to keyhole under a spinal anaesthetic as opposed to full general. I have to have local or spinal anaesthesia these does as my breathing won’t permit a general. I would avoid Depo as it causes marked bone loss giving rise to osteoporosis…you have enough issues with MD without broken bones to boot. Good luck with the gynae

    Best wishes
    Gill

    miracle77
    Participant
    Posts: 267
    Joined: 17/08/2011
    #90910
    Re: Gynae probs

    Update: medication clearly not working so for time being will be given an injection to stop my ovaries although this will probably require me to take HRT. The consultant says a hysteroscopy/ablation treatment is the best option under general anaesthetic therefore I will need the Brompton to provide the Resp support team. I thought this might be coming so have prepared myself mentally but the fear element of anaesthetic will always be there. So for now I wait for my GP to get things moving…

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90911
    Re: Gynae probs

    Good luck hun x

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #90912
    Re: Gynae probs

    @sar78 wrote:

    Update: medication clearly not working so for time being will be given an injection to stop my ovaries although this will probably require me to take HRT. The consultant says a hysteroscopy/ablation treatment is the best option under general anaesthetic therefore I will need the Brompton to provide the Resp support team. I thought this might be coming so have prepared myself mentally but the fear element of anaesthetic will always be there. So for now I wait for my GP to get things moving…

    Keep us posted so we can send you positive thoughts and prayers for your speedy recovery from surgery.

    Syb

    sybyllascarlett
    Participant
    Posts: 383
    Joined: 07/02/2012
    #90913
    Re: Gynae probs

    @sar78 wrote:

    Update: medication clearly not working so for time being will be given an injection to stop my ovaries although this will probably require me to take HRT. The consultant says a hysteroscopy/ablation treatment is the best option under general anaesthetic therefore I will need the Brompton to provide the Resp support team. I thought this might be coming so have prepared myself mentally but the fear element of anaesthetic will always be there. So for now I wait for my GP to get things moving…

    ((((Hugs)))) mind consuming times, sending positives and an endless free shoulder/ear.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #90914
    Re: Gynae probs

    virtual Hugs.

    I also get very anemic and bruise more now at period time. I can have 2 short times a month or have a gap of months.
    I think my tilted pelvis is causing issues with bowl/bladder lady bits. I don’t think the muscle are strong enough to do all three jobs and hold me up never mind breathing. I am sure I have a bowel pelvic prolapse.

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #90915
    Re: Gynae probs

    A third way…

    Went to Guy’s on Tues and it turns out there might be a third non-surgical option thus avoiding a general anaesthetic – uterine artery embolisation. It would just require a local anaesthetic and involves cutting off the blood supply to the ovaries. Have to have an MRI to find out if it is viable – fingers crossed!!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90916
    Re: Gynae probs

    @sar78 wrote:

    A third way…

    Went to Guy’s on Tues and it turns out there might be a third non-surgical option thus avoiding a general anaesthetic – uterine artery embolisation. It would just require a local anaesthetic and involves cutting off the blood supply to the ovaries. Have to have an MRI to find out if it is viable – fingers crossed!!

    Fingers crossed it is a go

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #90917
    Re: Gynae probs

    Yesterday I had my third appointment at Guys to discuss the results of the MRI. Not only was I seen 10 mins before my allotted time but I was in the consulting room no more than ten minutes. The MRI has shown that the fibroid is in a position that is suitable for the non-anaesthetic procedure!! It has grown to 8cm diameter so no wonder I have felt so uncomfortable as everything is squashed down there at the best of times due to posture.

    I am now to wait for another appointment to carry out the embolisation procedure which will cut off the blood supply to the pesky thing and it will shrink. I won’t have to stay in, another bonus, and I am mightily relieved that there is something that can be done without knocking me out. I’m sure a lot of you will understand the extent of my relief.

    Drinks are on me at Friday’s Hub Pub session :yes:

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #90920
    Re: Gynae probs

    @sar78 wrote:

    Yesterday I had my third appointment at Guys to discuss the results of the MRI. Not only was I seen 10 mins before my allotted time but I was in the consulting room no more than ten minutes. The MRI has shown that the fibroid is in a position that is suitable for the non-anaesthetic procedure!! It has grown to 8cm diameter so no wonder I have felt so uncomfortable as everything is squashed down there at the best of times due to posture. I am now to wait for another appointment to carry out the embolisation procedure which will cut off the blood supply to the pesky thing and it will shrink. I won’t have to stay in, another bonus, and I am mightily relieved that there is something that can be done without knocking me out. I’m sure a lot of you will understand the extent of my relief.
    Drinks are on me at Friday’s Hub Pub session :yes:

    Excellent news that things are far simpler and less serious than they could have been.

    Even better that there is a remedy that is less invasive and less taxing.

    This is a great relief !

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #90918
    Re: Gynae probs

    Hi! I used to have the same problem.
    I had a hysterectomy when I was 28, i was told when I was 16/17 that I wouldn’t be able to have children :lol: well that was wrong! 4 kids later,!

    If there is another way I’d go for it, I only found out a year or so ago that when I had the operation they also took out my left ovary due to a cyst. I was having pain in my right side so had a scan, then went to see the gynea for an internal scan when he told me lying there legs acimbo that do you know that you only have one ovary and that you have polycystic ovaries?

    No i didn’t know! I ‘m going to take my own advice and in future ask to be copied in to ALL notes, letters and referrals for any problems.

    Also recovering from a hysterectomy takes 6 months! to get back to normal Not 12 weeks? Your house bound for 12 weeks they don’t tell you this till you have it done! When I asked why? they said well you may say no to it if we told you beforehand?!
    I had a carer and meals on wheels :roll:
    Two weeks after my hysterectomy I had to go to a funeral high on pain killers and in agony I had a few to many sherries and climbed a tree! OMG! Nearly killed myself! :stars:

    I hope you get this sorted soon it must be making you feel awful, having a hysterectomy was one of the best things for me. :waving:

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
    #90919
    Re: Gynae probs

    Ooops! I forgot to say that I developed malignant hypothermia after the op! :roll: don’t know how I forgot that!

    I started convulsing an shaking like I was possessed my temperature went through the roof! But they didn’t know why as I didn’t have a diagnosis then. I remember alarms going off and nurses running around like headless chickens, so comforting and reassuring , not!

    I had to have some ‘VERY expensive’ drugs that they usually give to chemo patients so the sister kept reminding me! :roll: as if I gave a castle main 4XXXX how much they cost I could of DIED!

    So if you can have non invasive no general all the better. :)

    Shellybear
    Participant
    Posts: 364
    Joined: 09/12/2010
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