Viewing 14 posts - 21 through 34 (of 34 total)
  • #191116
    Reply To: Heart

    Hi cat thank you for replying so quickly, I don’t have any gadgets at the moment but definitely need to get some I think this is the way forward, I’m waiting to see a genetic councilor but won’t be happening any time soon due to the pandemic I just need too know about how it’s going to progress and to be able to find out from them possible links to other health issues I have lots of questions I want to ask. Md is very challenging for of us both physically and mentally already never mind whats going, the only thing we can do is to stay positive anyway we can, hope you’re all OK. Jeanette

    Crazy cat
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    #191117
    Reply To: Heart

    Hi Jeanette. I too struggle with the mental side also. Going from playing sport for my country to wandering if I’ll be able to continue with my job. Do you have an email for your consultant? I have found I’ve emailed them on average twice a year to ask about things that have progressed and it seems to help me with things mentally. I don’t find phoning the gp any use as they don’t know what it is. Nobody likes the unknowing but I suppose at the end of the day nobody knows what’s going to happen :)

    Ems15
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    #191120
    Reply To: Heart

    HI Ems15

    What sport did you play for your country? Have you thought about continuing with a Disability sport?

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #191121
    Reply To: Heart

    I was a golfer. I got to play all over the world with it so very lucky to have had the opportunity :) fortunately I am still able to play however not able to manage what I used to. Certainly feel it after! Hopefully still got some time left to play, I think my legs and knee are just going through a bad patch! I used to teach disabled and under privileged kids, one boy who was blind and he was brilliant :) love all sports and yes when/if it gets to the stage it’s no longer possible I would love to participate in a disability sport. If not I’d be happy to sit in a golf cart and cheer on my friends!

    Ems15
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    #191122
    Reply To: Heart

    Sport has so many benefits, social, promoting good mental health and the opportunity to travel. Did you represent Team Gb?

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
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    Joined: 20/09/2010
    #191123
    Reply To: Heart

    I never got that far. I represented Scotland for two or three years and unfortunately when I was training at the institute of sport I dislocated my shoulder and after recovery developed something called the yips which all golfers out there will know about! I tried for a year to overcome this but never got back to the level I was at. That has probably been my biggest mental challenge I have overcome. Working so hard for your dream and it disappearing in a split second :( But everything happens for a reason in my mind! I love golf more than ever before now and I love my job :) do you participate in any sport?

    Ems15
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    #191124
    Reply To: Heart

    Very positive attitude.

    I hope to represent Scotland in the sport of Boccia. Which is a game with similar objective to curling (without ice lol) I also dabble in powerchair football.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
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    #191125
    Reply To: Heart

    That is absolutely brilliant! I have seen that before but never knew it was called that. My old foursomes partner in the county golf is one of our top Scottish curlers! When will you find out if you will be representing Scotland? I have everything crossed for you :)

    Ems15
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    #191126
    Reply To: Heart

    We have very strong able and disability curling teams.

    Training has gone to pot this year with all the covid hassles closing all the courts. Working on maintaining conditioning and hopefully get back on the pathway for development squad next year.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
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    Joined: 20/09/2010
    #191127
    Reply To: Heart

    Yeah we are pretty good at the curling :) well keep us updated with how you are getting on with it. I love success stories! Hopefully we can start getting back to some normality soon.

    Ems15
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    #191187
    Reply To: Heart

    Hi everyone, my gp is very good but they are not specialist, so I cannot get the information from them that I could get from a genetic councilor, but hopefully that might happen in the new year. It’s good to hear you have those goals in life even with challenges that you can adapt, I wish I was a sporty person.stil coming to terms with the condition, but just have to take each day as it comes. I also have days where I feel guilty for feeling sorry for myself, knowing there so many people out there with much worse problems, I don’t know if any of you get that. Jeanette

    Crazy cat
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    #191193
    Reply To: Heart

    Crazy cat, of course we get that because we have all been there. You also forget that whilst there are people who are worse off than ourselves there are many, many more who are better off with no MD or other condition to live with. If you were one of that group then you will also mourn the loss of the things that you used to do. I have lost two careers as a consequence of my MD, along with many other abilities. Yes, it saddens me to some extent, but it has also opened up new opportunities as well. Along this MD path we tread I have met so many amazing, and I do mean amazing, people whom I would not have have come across otherwise.I constantly meet the best of humanity who are happy to help oen doors or other simple jobs to make my life easier. I have, and I know it sound strange, leaned to enjoy my scooter, and have races with my grandchildren. I have been able to commit to other things which I would never have done had I been ‘normal’ (still trying to work out what that is.
    In essence, do not feel guilty for mourning a loss, you are not alone.

    Mike

    So many love songs, so little love.

    embayweather embayweather
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    #191198
    Reply To: Heart

    I never seen myself as a sporty person either. I first sought out disability sports after a year long period of bed rest and isolation following an injury. I needed something to help engage with other people on a social level and to get out the house. Hopefully next year will see more open days to come and try sports that you could maybe access to have a go.

    Some of my family and friends are part of craft clubs. camera clubs. Getting out there and being part of something can really help an outlook on life. Make the old MD less of a main factor in our lives. I know personally that the online engagement of my sporting clubs and that of my family’s craft clubs has been invaluable this year.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #191208
    Reply To: Heart

    Thank you cat and Mike for your responses makes me feel better and in the new year hopefully I will be able to try something new. Jeanette

    Crazy cat
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