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  • #182583

    Hello I’m Claire I’m almost 33 I was Diagnosed with myotonic dystrophy type 1 at 19!i also have a daughter with congenital myotonic dystrophy type 1 we are from wales

    Ladyc86 Ladyc86
    Posts: 0
    Joined: 02/11/2019
    Reply To: Hello

    HI Claire

    Welcome to forum :welcome:

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Posts: 1,002
    Joined: 20/09/2010
    Reply To: Hello

    Hello I’m Saku.
    I have something to ask you, who has any type of muscular dystrophy. I have myotonic muscular dystrophy type I. And I’m writing a screenplay about the disease so I’m asking you for help if anyone would be that good to share with me your experience and how did it progress. You can contact me in DM. If the post is not appropriate you can delete it. Thanks.

    Posts: 0
    Joined: 12/11/2019
    Reply To: Hello

    You can contact me if you want, I have DMD.


    Diggers14 Diggers14
    Posts: 2
    Joined: 16/11/2014
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