Viewing 4 posts - 1 through 4 (of 4 total)
  • #182583
    Hello

    Hello I’m Claire I’m almost 33 I was Diagnosed with myotonic dystrophy type 1 at 19!i also have a daughter with congenital myotonic dystrophy type 1 we are from wales

    Ladyc86 Ladyc86
    Participant
    Posts: 0
    Joined: 02/11/2019
    #182589
    Reply To: Hello

    HI Claire

    Welcome to forum :welcome:

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #182891
    Reply To: Hello

    Hello I’m Saku.
    I have something to ask you, who has any type of muscular dystrophy. I have myotonic muscular dystrophy type I. And I’m writing a screenplay about the disease so I’m asking you for help if anyone would be that good to share with me your experience and how did it progress. You can contact me in DM. If the post is not appropriate you can delete it. Thanks.

    saku
    Participant
    Posts: 0
    Joined: 12/11/2019
    #183016
    Reply To: Hello

    You can contact me if you want, I have DMD.

    David

    Diggers14 Diggers14
    Participant
    Posts: 2
    Joined: 16/11/2014
Viewing 4 posts - 1 through 4 (of 4 total)

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