Viewing 9 posts - 1 through 9 (of 9 total)
  • #75331
    Help Please

    Hi there,
    We are hoping to see if anyone out there knows of anyone who has had Achilles tendon lenthening done? Our 6 year old son, who has been diagnosed with Becker MD,has been strongly advised to get this procedure done? We understand all the logic and reasons behind why it needs to be done, BUT the biggest fear is the muscle deterioration in the cast, which will be on for 4 weeks! We fear that once the cast comes off it will take a very long time to get muscle strength back in his calf muscle, or if at all. All the specialists are saying to us, thankfully he is very active and strong and young, which will all stand to him:-) As you can understand we are very anxious to make the right decision for our little boy! We were told we would be waiting awhile for the procedure, but then they came back to us a couple of days ago saying there may be a slot this coming Monday, so we are in a big panic! I really hope someone has some knowledge on this? Please Help? Thank you

    cwford
    Participant
    Posts: 7
    Joined: 10/07/2014
    #94455
    Re: Help Please

    I can understand your concerns over how long your boy will take to recover after the procedure and I wish I had a magic seeing eye to be able to tell you for sure.

    MD works in its own way, at its own pace, which is maddening. I can see where the Specialists are coming from I think they are thinking that the fitter your boy is when he has the Op the quicker he will recover and reap the benefit of the procedure.

    Tough call – I do not know anyone personally who has had the procedure done, but hopefully someone will pop in here before Monday and help you.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #94456
    Re: Help Please

    hi, I had the lengthening done at 14yrs old and I defo wish that I had had it done a lot sooner.
    the curvature in my spine had got worse and I was for ever tripping up.
    when I had it done. I was in the old plaster of paris for 6wks and then they put me in the lightweight casts for a further 6wks.
    once I came out of the casts, I had to learn how to walk again with crutches. this involved tons of physio and also hydro therapy.
    however, I reckon that within 6mths, my legs were actually stronger than before the op.
    I also reckon that without the op, I would have been wheelchair by the time I was 16.
    im now 43, been to uni, ive worked all over Europe and only just starting to need the chair.
    if you have any questions. you can pm me and i’ll do my best to answer them

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
    #94457
    Re: Help Please

    Thank you both so much for your lovley and very informative replies, we really appreciate it very much:-)

    We heard late yesterday that the operation wont be going ahead now this coming Monday but possibly Monday two weeks now, which we feel gives us a little more time! We had a very good meeting with our Physio today, which did help clarify quite a few of our queries! It is very hard to be objective! Our logic is saying one thing and our hearts another. Its one thing making the decision for oneself, but making it for your child is a whole other thing:-( We have been told that he should be in the cast for 4 weeks then intense physio etc after that but for how long we dont know exactly! It is a scary time!! We just hope that his strength will help him through it all? Our biggest fear is that he will be worse off than he is now!!! He is a very active happy-go-lucky little fella! It is very reassuring to know that you have been through it and feel that if you were younger it would have helped more! Also it is wonderful everything that you have achieved since!! It is hard to imagine what is ahead for him!!!

    It is a scary time, we just hope we will be doing the right thing for him???

    Thank you so much!

    Best wishes

    cwford
    Participant
    Posts: 7
    Joined: 10/07/2014
    #94458
    Re: Help Please

    I had this done at 16. Basically they had me up walking the day after the operation with a walker and my legs in plaster up to the top of my calf muscles, I’m not going to lie, it hurt like hell but it had to be done.

    The unexpected part for me was after the took the casts off. Having not walked on my heels for 16 years, it felt like I had a billiard ball under each heel !!! It took a good week of quite severe discomfort before my heels got used to the weight.

    SteveF
    Participant
    Posts: 41
    Joined: 30/03/2012
    #94459
    Re: Help Please

    :yes: thank you for sharing SteveF …. interesting aspect with the heels. I remember when I got my first foot drop splints how the heel felt like a roller-skate I felt so unstable.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #94460
    Re: Help Please

    I had this procedure when I was 6, I’m not sure how it affected muscle in my legs because by that time I had stopped walking. The idea was that my ankles were better angled to enable me to walk with callipers (KAFOs). My ankles have remained at a good angle some 30 years later and I am glad I had it done.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #94461
    Re: Help Please

    Oh WOW,

    Thank you everyone for your very kind imput, we really appreciate it so much!! I cant tell you how much you have uplifted me in knowing that it can be a success:-) We fully anticipate the pain for the poor poppit and the intense rehab too!

    I apologise for the delay in getting back online, but we have had problems with the computer and I couldnt get my account to work, but we are back on track today :-) The surgery was postponed from last monday, then we were given a date of the 29th, but now that has been pushed out to the 12th August. So I hope beyond all hope that everything will go well??

    Thank you all so much!

    Best wishes

    cwford
    Participant
    Posts: 7
    Joined: 10/07/2014
    #94462
    Re: Help Please

    at least the poor sod wont be in pot in this hot weather :yes:

    stefan

    littlestef
    Participant
    Posts: 526
    Joined: 04/10/2011
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