Hi guys my name is Ben I have DMD Duchenne Muscular Dystrophy

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  • #180713
    Hi guys my name is Ben I have DMD Duchenne Muscular Dystrophy

    I’ve signed up to this chat in the hope to combat my pain if anyone one could help with this sending me things they have done/used. Thank you Ben :welcome:

    Bennywizbang
    Participant
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    Joined: 02/09/2019
    #180714
    Reply To: Hi guys my name is Ben I have DMD Duchenne Muscular Dystrophy

    The pain is caused by a compressed vertebrae fracture in my lower back and was wondering has anyone else had/have these symptoms. Thanks Ben

    Bennywizbang
    Participant
    Posts: 0
    Joined: 02/09/2019
    #180715
    Reply To: Hi guys my name is Ben I have DMD Duchenne Muscular Dystrophy

    :wave: :welcome: :wave:

    Hi Ben

    I have a form of CMD called rigid spine. I have nerve and disc pain from scoliosis and damaged tail bone.

    For the tail bone pain it was greatly managed by pain killer injections over a period of 2 years. I use lidacain patches and anti inflammatory meds as well. Getting the right seating has been helpful in managing pain.

    Have you tried massage?

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
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    Posts: 1,002
    Joined: 20/09/2010
    #180735
    Reply To: Hi guys my name is Ben I have DMD Duchenne Muscular Dystrophy

    Hello Ben. May I support the use of the patches, they work wonders for me on back pain. But might I also suggest getting a referral to a Pain Clinic to get some expert advice and perhaps pain meds not normally available through the GP.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
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    Joined: 02/11/2015
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