Viewing 4 posts - 1 through 4 (of 4 total)
  • #189919
    Hi, I'm Bill, I have IBM.

    I was diagnosed with inclusion body myositis 4 years ago. I am shocked how little support is made available to people in this position. Most medical people I have been in contact with have never heard of IBM. Makes life difficult. 😷

    BillB
    Participant
    Posts: 0
    Joined: 24/09/2020
    #189925
    Reply To: Hi, I'm Bill, I have IBM.

    Hi Bill,

    Welcome to the forum.

    We do have some members with IBM but they might
    bit be visiting the forum at this exact time.

    A lot of the issues you face will be similar for
    all three types of MD so feel free to ask questions.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #189927
    Reply To: Hi, I'm Bill, I have IBM.

    Hello and welcome Bill. Please do feel free to ask questions, comment or even rant about things.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #189943
    Reply To: Hi, I'm Bill, I have IBM.

    Hi

    It might be useful if you share abit about yourself like age, first symptoms, progression of IBM and how it currently effects you.

    It might not be as bad as you think, but yes initially is shocking and help is basic as most GPs know nothing about these conditions

    Joe
    Participant
    Posts: 0
    Joined: 01/01/2020
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