August 5, 2019 at 4:37 pm #180098Incontinence
I’ve not been active here for a long time. I have FSH M.D. and now have to rest a lot more than I used to (aged 61 now). For the past 3 years I have lost control of my bowel and need to use pads which my carers deal with.
It is really getting me down, and I wondered if anyone else is in the same situation? I was told many years ago that the dystrophy wouldn’t affect the bowels but I can’t think how else I could have lost control. My bladder function is good.
If anyone can offer advice or help even just by saying “me too” I wouldn’t feel so alone.
Thank you.sybyllascarlettParticipantPosts: 383Joined: 07/02/2012August 6, 2019 at 1:11 pm #180127Reply To: Incontinence
I am so sorry you are having this extra problem to deal with along with all the others that affect those of use with FSH. You might like to look here https://www.musculardystrophyuk.org/talkmd/topic/incontinence/, where there is a long discussion of the problem. I would also suggest seeking the advice of a specialist in case the cause of your problem is not MD.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015August 6, 2019 at 10:38 pm #180134Reply To: Incontinence
Hi sybylla, good to hear from you although sorry to hear you are having problems.
Are you under a neuro specialist? As Mike said above, I would urge you to ask about this if you haven’t already. We are all affected in different ways and it could be a muscle thing but it might not be.
Keep in touch.
A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adamssar78ModeratorPosts: 2,246Joined: 05/03/2015August 7, 2019 at 12:25 am #180139Reply To: Incontinence
Hi. Welcome back.
I too have various swallow. Digestive, bowel and bladder issues.
I second above and best start is to rule out normal factors that anyone can get. During my journey they started with dietician. Checking allergies and anything that may cause issues. Like lactose intolerance.
Many years down the line I have been diagnosed with slow transit and poor muscle tone in Bowel. Weak pelvic floor and weak motality. Meaning it all moves too slow. Constipation can also present with what they call over flow motions. Where un proceed matter bipasses a mass that’s slower or stuck.
So for me my bowel issues is md related as I have poor muscle tone and reflex and have been prescribed intervention.
"""""""What doesn't kill you makes you stronger""""""CatModeratorPosts: 1,002Joined: 20/09/2010August 7, 2019 at 9:25 am #180146Reply To: Incontinence
Thank you, I have just read that thread of posts and it was helpful, just knowing there are others in the same boat as me.
I am no longer seen by any consultant at the hospital as my last doctor retired and I wasn’t assigned a replacement. If have any concerns I need to see my GP and then be referred.sybyllascarlettParticipantPosts: 383Joined: 07/02/2012
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