Viewing 6 posts - 1 through 6 (of 6 total)
  • #180098
    Incontinence

    I’ve not been active here for a long time. I have FSH M.D. and now have to rest a lot more than I used to (aged 61 now). For the past 3 years I have lost control of my bowel and need to use pads which my carers deal with.
    It is really getting me down, and I wondered if anyone else is in the same situation? I was told many years ago that the dystrophy wouldn’t affect the bowels but I can’t think how else I could have lost control. My bladder function is good.
    If anyone can offer advice or help even just by saying “me too” I wouldn’t feel so alone.
    Thank you.

    sybyllascarlett
    Participant
    Posts: 383
    Joined: 07/02/2012
    #180127
    Reply To: Incontinence

    I am so sorry you are having this extra problem to deal with along with all the others that affect those of use with FSH. You might like to look here https://www.musculardystrophyuk.org/talkmd/topic/incontinence/, where there is a long discussion of the problem. I would also suggest seeking the advice of a specialist in case the cause of your problem is not MD.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #180134
    Reply To: Incontinence

    Hi sybylla, good to hear from you although sorry to hear you are having problems.

    Are you under a neuro specialist? As Mike said above, I would urge you to ask about this if you haven’t already. We are all affected in different ways and it could be a muscle thing but it might not be.

    Keep in touch.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #180139
    Reply To: Incontinence

    Hi. Welcome back.

    I too have various swallow. Digestive, bowel and bladder issues.

    I second above and best start is to rule out normal factors that anyone can get. During my journey they started with dietician. Checking allergies and anything that may cause issues. Like lactose intolerance.

    Many years down the line I have been diagnosed with slow transit and poor muscle tone in Bowel. Weak pelvic floor and weak motality. Meaning it all moves too slow. Constipation can also present with what they call over flow motions. Where un proceed matter bipasses a mass that’s slower or stuck.

    So for me my bowel issues is md related as I have poor muscle tone and reflex and have been prescribed intervention.

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #180146
    Reply To: Incontinence

    Thank you, I have just read that thread of posts and it was helpful, just knowing there are others in the same boat as me.
    I am no longer seen by any consultant at the hospital as my last doctor retired and I wasn’t assigned a replacement. If have any concerns I need to see my GP and then be referred.

    sybyllascarlett
    Participant
    Posts: 383
    Joined: 07/02/2012
    #180207
    Reply To: Incontinence

    Indeed it does sound like you need a conversation with your GP about your problems. Do pease tell us how you get on.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
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