Information Day for CMT, CMD & Becker

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  • #165136
    Information Day for CMT, CMD & Becker

    Hi all,

    In February 2019, we’re holding an Information Day for people who have Congenital muscular dystrophy, Charcot-Marie-Tooth and Becker muscular dystrophy. We’re also inviting those with family members who have these conditions to attend to find out more about the condition.

    There will be a range of condition-specific workshops and neuromuscular specialists and researchers available to talk to on the day. The best part is that you’ll get the opportunity to meet and share your experience with other people with your condition.

    The event is in Cambridge, it is free to attend and includes lunch. You can sign up here https://www.musculardystrophyuk.org/events/information-day-2019/

    We hope you can join us there. :ty:

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #165250
    Reply To: Information Day for CMT, CMD & Becker

    Looks good. Will there be similar held in Scotland?

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #165252
    Reply To: Information Day for CMT, CMD & Becker

    There won’t be for these three conditions together, but there might be for them separately or other conditions. I’ll keep you posted!

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #165783
    Reply To: Information Day for CMT, CMD & Becker

    Hello,

    Why is LGMD not part of this? I went to an event last year at the same venue which also included LGMD. It was very informative.

    Shevvyt

    Shevvy

    shevvyt1
    Participant
    Posts: 0
    Joined: 16/11/2013
    #165942
    Reply To: Information Day for CMT, CMD & Becker

    Hi Shevvy,

    We’re looking to do an information day for other conditions including LGMD later in the year so I’ll keep you posted.

    Thanks
    Emma

    Online Manager, MDUK
    Looking to get more involved with the MD community

    Emma Smith-Bodie Emma Smith-Bodie
    Participant
    Posts: 0
    Joined: 30/07/2018
    #166334
    Reply To: Information Day for CMT, CMD & Becker

    Hi,

    Thanks for your reply.

    Excellent. I look forward to hearing about the day which will include LGMD.

    Shevvy

    Shevvy

    shevvyt1
    Participant
    Posts: 0
    Joined: 16/11/2013
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