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  • #135518
    Looking for suitable activities

    Hello everyone.
    My name is Madmummy1981 and I am a Carer for a young man with Duchenne Muscular Dystrophy. He is Wheelchair bound and is Ventilated via a Tracheostomy. He has a little movement in his hands but that is it.

    He is only 20 years old and I am one of a team who provide 24 hour care. However he leads a very reclusive life and I feel it is part of my role to think of things we could go out and do so he can lead a full life.

    But what kind of activities can we do that will acommodate his Trachy?

    I hope some of you can help

    Cheers

    Madmummy1981

    Madmummy1981
    Participant
    Posts: 0
    Joined: 27/07/2016
    #135519
    Reply To: Looking for suitable activities

    Hello everyone.
    My name is Madmummy1981 and I am a Carer for a young man with Duchenne Muscular Dystrophy. He is Wheelchair bound and is Ventilated via a Tracheostomy. He has a little movement in his hands but that is it.

    He is only 20 years old and I am one of a team who provide 24 hour care. However he leads a very reclusive life and I feel it is part of my role to think of things we could go out and do so he can lead a full life.

    But what kind of activities can we do that will accommodate his Trachy?

    I hope some of you can help

    Cheers

    Madmummy1981

    Hi and welcome to the forum. what region/ area are you near

    there is various wheelchair sports that look fun.

    Wheelchair football requires ability to self drive own chair. http://www.thewfa.org.uk/

    Boccia is a multi ability sport where player can either throw a small ball towards a target ball(other teams) use of a ramp similar to the type at ten pin bowling. and if hand problems the use of a pointer can be employed to push ball off the aiming ramp. http://gb-boccia.org/

    There are board game clubs across country.

    Car show days. always one someplace.

    if hes not already your client may benefit from joining us on this forum and the DMD pathfinders Facebook group. as well as having a look at MD groups Trailblazer group on facebook.

    regards

    Cat

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #135594
    Reply To: Looking for suitable activities

    Hello and welcome. My daughter, who is not MD, spends a good part of her time out hunting Pokemon on her phone. I am not too sure what it is about but apparently they aare everywhere. if he is able to control a phone or tablet connected to a phone, he might find this an amusing pursuit, which at least get him to new places and in to the fresh air.
    Photography (knowing my background it has to be). A camera can be easily secured to his chair and he can take images via a small remote control if need be. These can be downloaded to a tablet or laptop so he can veiw, or alter, then later.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
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