September 5, 2020 at 12:45 pm #189583MD and Diabetes
Is anyone aware of any research into the effects of diabetes n MD? Especially with regard to the use of insulin. I was recently put on insulin but it made be so ill, with much greater pain and weakness, tummy upsets and much, much more. So much so I stopped. So I would be interested if anyone has had similar. I did try contacting the Diabetic Specialist Nure but they are on holiday for two weeks.
So many love songs, so little love.September 7, 2020 at 12:17 am #189608Reply To: MD and Diabetes
Do you have type 1 or type 2 diabetes.
I guess with MD as not being able to be active and tired can lead to being overweight(even if due to muscle loss) and inactive which with progression leads to diabetes
I would speak to your gp and also
Maybe buy a blood sugar monitor for diabetes, I have one and also a blood pressure heart rate monitor. We have life long health issues so it’s good to keep track of our bodies
I think with the MD there will always be some byproducts health issues caused by the muscke wasting.
My resting heart rate was around 55bpm now its around 85bpm and my blood pressure has gone up.JoeParticipantPosts: 0Joined: 01/01/2020September 7, 2020 at 1:28 pm #189624Reply To: MD and Diabetes
I know its common in Duchene. The only men I know with MD who inject insulin are those with childhood type 1. Where they have never produced it themselves.
I would be cautious of stopping treatment before seeing nurse. In meantime can you look at diet. Both people I know with both type 1 and 2 have to juggle diet and meds to keep level. It could be something in your diet is playing havoc in tandem with new meds.
"""""""What doesn't kill you makes you stronger""""""CatModeratorPosts: 1,002Joined: 20/09/2010September 8, 2020 at 12:24 pm #189639Reply To: MD and Diabetes
I am a type 2 diabetic and have been for nearly twenty years. Been well under control until last year when I developed a rash which was, in my opinion, dermatomyositis. I am still awaiting the correct diagnosis from my urgent referral last year. As usual everything is on hold because of the virus, and the doctors I see have never heard of FSHD for the most part, and know little about MD as a whole. My clinical background gives me a good insight into the processes of most things that involve my body, so I do keep a careful watch on it. My weight has been going down steadily the past few years, having lost around four stone. Helped in no small measure by the Liraglutide and medical cannabis I use which both suppress my appetite. I am concerned at the rapid and substantial change that was brought about going on to insulin, and I am struggling to understand why. I cannot talk to my doctor as he referred me to the Diabetic Nurse. I cannot talk to her as she is away, and when she returns I am not optimistic either as she has never ready my notes and does not know my clinical history. For me, a first step in treating a patient. So I look to find the solution myself, but not making much headway. I am sorry if this sounds like a big complaint about the NHS. there are some amazing staff who work there. Sadly, there are some who are less than amazing in our area.
So many love songs, so little love.September 8, 2020 at 2:22 pm #189641Reply To: MD and Diabetes
Sorry that you are suffering Mike. I can’t help you with your diabetes question. However, I think some of the issues with the NHS may only get worse. I live in London, and whenever I speak to medical staff here the same information keeps coming back. They are short of staff. In many cases regular staff have a left in the last year. One told me her colleague gave up nursing to work in Tesco, as she got fed up of working with not enough help. As one senior nurse said to me, ‘when our staff levels are this low we can’t provide a good service’. How many ‘new’ nurses did Boris promise? It’s not just nurses either. GP’s, district nurses, radiographers, the physiotherapist etc. Many have gone back to Europe.
People like us who have a disability are going to suffer more.
DavidSeptember 9, 2020 at 1:06 pm #189666Reply To: MD and Diabetes
Diggers I can understand what you mean. Thirty three years in the NHS and staffing and funding were always an issue. Particularly in my specialty. My staff and myself were always working unpaid overtime. Constantly looking for ways to do more with less. Always working through break times. I will not use the forum as a political stand, but the woes of the NHS are well known. When I joined, my mum and my wife joined, it was a great institution, full of vocational staff. Much much has changed. In many ways it is still a great institution, but the extra pressures are many, too many to cope with. My brother lives in the US where he clearly pays for treatment. It is still not all sweetness and light in that system either. The NHS staff, for the most part, work exceedingly hard to help patients, as my daughter is now doing. Like any organisation, we could all think of changes that would make a difference.Sadly, politics prevents such changes being made.
My beef was with the virus. Everything has stopped since it arrived. My multiple treatments have stopped, my investigations have stopped, GP appointments have stopped ( I cannot access the alternative surgery). Consequently my health is suffering more and more. Thankfully, I have enough knowledge to make adjustments. Many will not. A return to some form of normality will be welcomed.
So many love songs, so little love.September 9, 2020 at 1:22 pm #189667Reply To: MD and Diabetes
I don’t disagree with your argument Mike. The unit where I go is a respiratory unit. A very good one I may add. However, last July an issue was discovered when I had to go into A&E at another hospital. I was handed over to my unit and my unit did very well. I was receiving all the check-ups I needed, CAT scan etc. Then into this year, they have stopped. One of my consultants been trying to get a check up on my heart, to no avail. My health mean while deteriorates It is all very frustrating.
DavidSeptember 11, 2020 at 10:42 pm #189740Reply To: MD and Diabetes
The thing is most hospitals were near empty during covid peak, gp surgerys not doing many face to face just phone calls.
I think you really have to push hard, don’t feel like you are imposing just call your gp practice everyday until they sort your issue out or write a letter to the practice manager.
Mike you should look into a blood pressure monitor as Diabetes causes high blood pressure, which can lead to trouble if not sorted. My blood pressure has gone up so I called my GP Wednesday and I am getting a 24 monitor from them to assess it
Digger at the very least they should do a ECG in your practice, I had a echo cardio about a month ago so it can be done nowJoeParticipantPosts: 0Joined: 01/01/2020September 12, 2020 at 1:01 pm #189744Reply To: MD and Diabetes
Thanks fr the thought Joe, but having been in the trade as it were for decades I already have one. My blood pressure is up a little, the option is take the pills and fall asleep. The time I have left I would rather have with my eyes open. My bigger worry is that all my intercostals have failed with MD and I have only one half of my diaphragm working sor breathing is getting increasingly challenging. Spole to the hospital about it. all appointments have been cancelled (including mine last Thursday). They do not know when I will be contacted with regard to BIPAP, or even how, until the virus has gone. So I could have a long wait. Loads of other stuff happening too, but round here at least, as you get over 55 you become more and more disposable. We will just have to see.
So many love songs, so little love.
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