May 10, 2019 at 1:12 pm #177628Reply To: Meet ups/groups for people with same condition
There are no such pages available at the moment, although there are many Face thingy groups and the like out there. There is also the possibility of just writing a post indicating your type of MD in the heading and asking folk to message you. Certainly worth a try.
Cat may well pop up here and offer more in depth advice as she is a wiz with that sort of knowledge.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015May 12, 2019 at 9:32 pm #177696Reply To: Meet ups/groups for people with same condition
Link below is for MDUK peer support. I no longer seems to show phone number but if you call the main helpline they may be able to link you with group in your area.
As mike says there is a few Facebook groups.
Breathe with MD – for respiratory issues
Living with MD
woman with MD
Pathfinders – for Duchene MD
MDUK Trailblazers- a group for under 30s.
and a variety of condition specific like my own. Which is a CMD group and most specifically rigid Spine SEPn1
Whats your Type of MD?
Roughly where are you in UK?
"""""""What doesn't kill you makes you stronger""""""Cat (Mod)ModeratorPosts: 1,002Joined: 20/09/2010
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