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  • #178491
    Myotonic dystrophy

    Myotonic dystrophy :new: my son is 14 weeks old in hospital he was 7 weeks early and recently been diagnose with my myotonic dystrophy he is off ventilator and on by pap and has 30 minutes off each day and doing well, is anyone else going through this?

    Emmabella
    Participant
    Posts: 0
    Joined: 06/06/2019
    #178501
    Reply To: Myotonic dystrophy

    Hi and welcome to the forum.

    Forums been a little quiet just now. You might find some more people on Facebook groups.

    https://www.facebook.com/Mytonic-Dystrophy-121383354637457/

    or Facebook Breathe with MD
    https://www.facebook.com/groups/BreathewithMDSupportGroup/

    """""""What doesn't kill you makes you stronger""""""

    Cat (Mod) Cat (Mod)
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
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