Newly updated Duchenne muscular dystrophy factsheet

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  • #119642
    Newly updated Duchenne muscular dystrophy factsheet

    We are pleased to share our newly updated Duchenne muscular dystrophy factsheet.

    We are grateful to have received feedback from both Manjula Gohil and Penny Southall, who both have sons living with Duchenne muscular dystrophy.

    Manjula says: “The information is just enough to understand the complex condition and prognosis but it’s delivered in a bite size honest but at the same time very uplifting way. Anyone reading it would feel upset but optimistic and hopeful at the same time.”

    Share your own feedback with us: bit.ly/1IYz6SG
    and call us to receive a copy in the post: 0800 652 6352

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #119643
    Reply To: Newly updated Duchenne muscular dystrophy factsheet

    Hi Emily

    Thanks for posting. I’ve reposted the link as the forum cannot use short forms like Twitter and Facebook does :yes:

    DMD Factshert

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #119649
    Reply To: Newly updated Duchenne muscular dystrophy factsheet

    Thank you!!

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #119973
    Reply To: Newly updated Duchenne muscular dystrophy factsheet

    There is a news item on today’s BBC news website Health section, on DMD in mice and gene treatment.
    Sorry I can’t include a link.

    Sybylla

    sybyllascarlett
    Participant
    Posts: 383
    Joined: 07/02/2012
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