Viewing 19 posts - 1 through 19 (of 19 total)
  • #125867
    PIP in the news again!

    Personal Independence Payments have been in the news again recently! Have you been asked to reapply under PIP?

    We are hosting a Q&A session about PIP, come and join the discussion if you have questions, concerns or just to share your experiences! Please join us in this thread on Thursday March 24th from 12:00-1:30pm.

    We would love to hear from anyone who has already been through the process, or from anyone who has thoughts to share and questions to ask about PIP.

    We look forward to chatting with you on Thursday!

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #125868
    Reply To: PIP in the news again!

    I am concerned about what evidence to supply, because other than seeing my GP once a year for an Orthotics referral and a 30-second phone call with a physio every 6-9 months, that is the total of my medical interaction.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #125912
    Reply To: PIP in the news again!

    Hi there,

    The most important evidence will be the letters that come from people who know you the best and can support your own evidence about how it affects you on a daily basis. So if your GP and physio have a good understanding of how your condition affects you that is good.

    But it would be good to have some supporting evidence from professionals who have an understanding of these conditions as well if possible. If you do not see a neurologist at the moment, I would recommend getting in touch with your GP to be referred to a consultant. It might also be good to check if there is a neuromuscular care advisor in your area – we can help with this.

    We can also provide a letter to give a bit more information about your condition to help support your application. Have you been contacted about applying for PIP as yet?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #125917
    Reply To: PIP in the news again!

    Hi guys, I only have positive things to say from my experience.(having had 2 assessments)
    Knowing what to expect and understanding the process with what is required and how you can help achieve the correct verdict is very important. As advocacy ambassadors we are here to help guide and set expectations for the process.
    Even though there has been negative press recently, I feel this can be and should be easily achievable for those who deserve it. Feel free to message back :)

    Andy Barwell
    Participant
    Posts: 0
    Joined: 22/03/2016
    #125923
    Reply To: PIP in the news again!

    To the MODs, I wanted to post a reply on the other thread about PIP & even though I’m signed in I get this message “You must be logged in to reply to this topic.”

    NOTE::MOD has moved the posts here

    I wanted to reply to Andy Barwell who said “I feel this can be and should be easily achievable for those who deserve it.”

    I’m sorry sir but, I respectfully & very strongly disagree.

    If that’s your experience then you’re bloody lucky but, to say “it’s easy for those that deserve it” has actually made me damn angry because we’ve been visited by someone from ATOS who clearly had an agenda & that’s why we’re now locked in a court battle & other litigation I have to keep schtum about.

    These people observe you from the minute either you or they arrive. They look at how your dressed, whether you look clean, smell, the way you lift a cup, walk, stand, sit, from the moment you meet them you’re under scrutiny & then the clowns will go away, write a report & some other joker called a ‘decision maker’ who is not medically qualified & won’t have met you will decide whether you can walk 20 metres or not & wipe your own back side!

    So, I’m sure I won’t be alone when I say cobblers about people that deserve will get it because in our experience it’s the polar opposite. They are looking to save money & that’s why there’s a successful appeal rate at tribunal of over 43% I think it stands at at the moment. But, that’s the lower tier…

    How many more fail at the lower tier that don’t have the money or means to appeal & take their case to the next level? I’m sure that is incredibly high. That’s our fear because we can’t afford representation or get to London to the courts either. So, if we fail at the lower tier, which has already been postponed once, we’re f…flipping gonna lose out.

    This poxy government are waiting to spend £12 billion to buy a big carpet in order to sweep the disabled under it.

    So, forgive me for not sharing your optimism, as admirable as it is because unfortunately it’s just not true.

    The people that deserve it have to fight tooth & nail for it.

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #125942
    Reply To: PIP in the news again!

    Ok, so just to clarify on a statistic I made, the last I heard the success of PIP appeals stood at around 43% but, like I say, there is great concern surrounding the amount of people that are not successful & have no funds or means of attending court for a higher appeal.

    However, I stand corrected & have good news & bad…

    “The probability of a claimant winning their ESA or PIP appeal currently stands at 58% and 60% respectively – and rising. Which is no doubt why the DWP has been given £22 million to recruit 180 presenting officers for the next two years.

    In theory, presenting officers should act as a ‘friend of the court’, helping judges to reach a fair decision. In reality, they will be sent by the DWP to try to discredit claimants and browbeat tribunal judges into accepting the DWP’s interpretation of the law.

    Appeals are certainly not going to get any easier.”

    Courtesy of benfitsandwork.co.uk

    So, because more people are getting access to the funds they desperately need the government are posting more people to discredit their appeals at the courts. Democracy is dead, it’s official. This stinks like them posting people from the job centre at the doctors, a new low.

    I stand by my statement & vehemently oppose any suggestion that ‘the people that deserve it will get it’. Those words are the exact ones used by cameron when he got into power & first toyed with the idea of welfare reform six years ago & now look where we are. Thousands dead & millions struggling, living in fear, poverty & without warmth in a first world country.

    And as for this Crab fella, as Launton said, he has the mentality to believe your sexuality can be ‘cured’, he also voted for the ESA cuts & he’s locked in a court battle with his own constituents regarding the bedroom tax.

    Out of the frying pan :bang:

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #126060
    Reply To: PIP in the news again!

    Hi All,

    My name is Joel and I am the Advocacy Development Officer at Muscular Dystrophy UK.

    It is really good to hear that Andy has had such a positive experience, and in theory PIP should be available to all that need that level of support. Unfortunately we are also aware that there have been quite a few problems in the implementation of PIP since it was rolled out in 2013. We have have been working to try and improve the situation by feeding back to government on the trends that we see. It would be great to hear about any experiences that you have had – both good and bad.

    If you are experiencing any problems with your application then please do contact our advocacy team who may be able to support you. You can get in touch with us on 0800 652 6352 or email us at info@musculardystrophyuk.org

    JoelR JoelR
    Participant
    Posts: 0
    Joined: 01/12/2015
    #126068
    Reply To: PIP in the news again!

    We can also provide a letter to give a bit more information about your condition to help support your application. Have you been contacted about applying for PIP as yet?

    Not yet, but I would rather be prepared and have time to carefully consider my repose to their questionnaire/form than be chasing tails against a time limit for the required and acceptable documentation.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #126071
    Reply To: PIP in the news again!

    We can also provide a letter to give a bit more information about your condition to help support your application. Have you been contacted about applying for PIP as yet?

    Not yet, but I would rather be prepared and have time to carefully consider my repose to their questionnaire/form than be chasing tails against a time limit for the required and acceptable documentation.

    Hi there,

    Yes, I think that would be good in the meantime. We would be happy to send over a guide that outlines the descriptors and how they score points. It is also good to keep a diary of how your condition affects you in the meantime as this can also be entered into evidence.

    Feel free to get in touch with us directly so that we can take your details and send this out to you :). You can either contact myself at s.handa@musculardystrophyuk.org or info@musculardystrophyuk.org or give us a call on 0800 652 6352

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #126077
    Reply To: PIP in the news again!

    Andy — From the people I have spoken to, and the personal accounts I have read, Andy you are in a minority, I sure am glad someone deserving is, because for a great number of people the transfer to PIP is stressing and distressing. I hope my personal trial with PIP will be closer to your experience than Woogy and others, but I am sliding towards preparing for ten-rounds with Tyson.

    Woogy — I have said before that the benefit system needed to be reviewed, there were historic protocols back long before I worked for the DWP that were still having an affect today. However, this review was also a great way of hiding a means to cut benefits, whether that be admin costs, or criteria of claimants; many of the ‘changes’ to JSA were more along the lines of strict adherence to the guidance and procedures already laid down. I agree that the businesses/personnel who are handling the front line are not adequately qualified, there has to be an element of profit making and there will be detrimental consequences.

    The stats regarding appeals are, to me, shocking that that many decisions are being overturned. If that many ‘errors of decision’ are being made then there is a serious issue with decision makers training or there is a serious flaw with the criteria.

    Either way, deserving people already worn down by managing and struggling with their medical conditions, will also have to take on bureaucracy, and that takes time, effort, energy, intelligence, knowledge and guts.

    As a disabled person I do not expect something for nothing but I do expect a high degree of understanding and accurate forwarding of my unique circumstances and not blind dismissal.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #126079
    Reply To: PIP in the news again!

    Yes, I think that would be good in the meantime. We would be happy to send over a guide that outlines the descriptors and how they score points. It is also good to keep a diary of how your condition affects you in the meantime as this can also be entered into evidence.

    I highly recommend the diary idea … I did that a number of years ago when I was battling to get my care component of DLA upgraded to middle …. took me two years got there eventually.

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #126082
    Reply To: PIP in the news again!

    Hi All,

    Along with the information that we can send out to you about how PIP is assessed, it might also be helpful to have a look at the form that they send out to you. You can find an example of the form here:

    https://www.gov.uk/government/publications/how-your-disability-affects-you

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #126085
    Reply To: PIP in the news again!

    I am sorry but, I just took exception to the wording of Andy’s post because it is so far removed from most people’s reported experiences & that includes our own. And it smacks of a political statement, saying one thing but, meaning another & it’s never to the advantage of the claimant.

    We saw an ex-paramedic who then went away & reported to somebody at the DWP, a decision maker, who is not medically qualified whatsoever. I don’t count a paramedic as being suitably qualified as they weren’t familiar with MD & so can’t possibly account for the huge variables in so many conditions particularly one they’ve no experience of! People’s conditions fluctuate & being able to function on any given day when you’re observed doesn’t take into consideration the other 364 days of the year.

    I’ve seen the report & know what these people look for & report on & that goes down to the size of the tea cup in front of you that they assume you’re able to lift prior to them arriving. So, be warned everyone.

    The welfare reform is disguised as reform but, it’s nothing more than cost cutting. This despicable government cannot admit that there are people that are genuinely sick & disabled that need help & that’s why the welfare bill is actually rising & they’re shocked by it.

    PIP is not reaping the savings that they thought it would & that’s why they (unsuccessfully) tried to change the parameters for qualification & thankfully failed. This is not over though, don’t you believe it. They’ll try again another way, the same as thy have with tax credits.

    People mistakenly believe that the lords defeated that proposal in December when in fact that cuts are still there but, are in the form of modification to universal credit. So people will still lose that money, it’s just a cut wearing a different coat.

    And as I said, we will never know the true scale of people that fail in their appeals because I suspect that some that fail at the lower tier aren’t able to pursue the matter further as they can’t afford legal representation or to get onto the first rung of the ladder with legal aid & also can’t attend the hearing which are held in the big cities only, not local… unless you live in a big city of course :LOL:

    And I suspect that is exactly what the government wanted in the first place. It’s all been geared to suit them, not the claimant that needs & relies on the money.

    I bloody hope IDS has to claim JSA now & see’s how hard it is.

    There is nothing noble in being superior to your fellow man; true nobility is being superior to your former self

    I, Disabled Bloke
    Participant
    Posts: 540
    Joined: 29/10/2010
    #126086
    Reply To: PIP in the news again!

    I have yet to be moved to PIP and have been waiting for the dreaded letter to arrive since Oct 2015 when the rest of us would start to be transferred over.

    I hope it will be a straight forward process and know that I will be extremely lucky if it is, I can only offer support and best wishes to those like Woogy who are having to fight this Government in getting what they rightly need. I can only imagine how draining and disheartening this can make you feel.

    We all know it should be straight forward and those who deserve it should be able to get it, but like most things to do with disability, benefits, adaptions etc it is very rarely straight forward. I can tell you of my experience at the hands of social services regarding care, but thats for another time, we all have at least one story like this to tell.

    I hope you get things sorted sooner rather than later Woogy and Andy I’m glad your experience was a positive one.

    Vicki
    Participant
    Posts: 1,015
    Joined: 05/03/2015
    #126088
    Reply To: PIP in the news again!

    Hi Woogy,

    I’m so sorry to hear about your bad experience. It is true that some of the assessors will not have as much knowledge of muscle-wasting conditions as we would hope, which is why it is so important to gather that initial evidence. A diary of how it affects you and supporting letters from health professionals and advocates who understand your condition can really make a difference.

    Sadly, as many people have mentioned, there have been issues in getting a correct initial decision and many have gone to appeal the decision successfully. You will not necessarily need legal representation at the first tier tribunal stage team and we would be happy to support anyone who feels their needs have been assessed incorrectly.

    We really appreciate everyone’s feedback as this helps us report problems that we are are seeing with PIP. We hope that by raising awareness of these issues we can work towards rectifying these problems and fight to get the right support for people with long-term muscle-wasting conditions.

    In the meantime, we are here to help and would be happy to offer advice for anyone applying for PIP or who is having problems with the process so please do get in touch with our team if there is anything we can do to help :)

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #126089
    Reply To: PIP in the news again!

    I have yet to be moved to PIP and have been waiting for the dreaded letter to arrive since Oct 2015 when the rest of us would start to be transferred over.

    I hope it will be a straight forward process and know that I will be extremely lucky if it is, I can only offer support and best wishes to those like Woogy who are having to fight this Government in getting what they rightly need. I can only imagine how draining and disheartening this can make you feel.

    We all know it should be straight forward and those who deserve it should be able to get it, but like most things to do with disability, benefits, adaptions etc it is very rarely straight forward. I can tell you of my experience at the hands of social services regarding care, but thats for another time, we all have at least one story like this to tell.

    I hope you get things sorted sooner rather than later Woogy and Andy I’m glad your experience was a positive one.

    Thank you, Vicky. If you need any advice or help with the process please do let us know :). We are here to help.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Moderator
    Posts: 32
    Joined: 12/05/2015
    #126152
    Reply To: PIP in the news again!

    Just marvelous that Andy has had such a stress free and
    good experience.

    Good also to get a balance by all the other opinions that have had
    the reverse experience. Indeed the statistics for the number of
    appeals and wrong decisions are sobering.

    No lifetime awards anymore so let’s hope Andy when he gets reassessed
    does not get the decision maker that other people have had.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #126156
    Reply To: PIP in the news again!

    Hi guys there is a very informative Facebook page that is run by a law Advocate, check out the notes and comments on the page. It may be helpful for those who have yet to go through the PIP process. https://www.facebook.com/FightBack4Justice/ (just copy and paste into your search bar)

    Clive
    Participant
    Posts: 0
    Joined: 27/03/2016
    #126160
    Reply To: PIP in the news again!

    That’s useful to know, thanks Clive :yes:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
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