Preimplantation Genetic Diagnosis

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  • #177118
    Preimplantation Genetic Diagnosis

    Hi All, :new:
    I am 32 years old and was diagnosed with myotonic dystrophy type 1 about 6 weeks ago. I am lucky in that my symptoms are relatively mild (currently my main symptom is difficulty relaxing grip) & I have a very supportive family but it has been a tough time with my dad and two of my cousins being diagnosed since and many more people are awaiting tests, including my four siblings.
    My question is about preimplantation genetic diagnosis as myself & my partner are thinking about going down that road. Has anyone been through it. What are their experiences? Wishing you all the best,
    Genevieve

    genevieve17
    Participant
    Posts: 0
    Joined: 13/04/2019
    #177125
    Reply To: Preimplantation Genetic Diagnosis

    Hello and welcome Genevieve. I do hope someone will be able to help with your question as I am sure it has been a thought that many here may have had.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #177198
    Reply To: Preimplantation Genetic Diagnosis

    Thanks Mike. Just wanted to put it out there that if anyone has experience of preimplantation genetic diagnosis but doesn’t feel comfortable discussing it publicly I’d be more than happy to talk over private messages. Floundering a little & would appreciate some support if anyone is or has been in a similar situation.
    Genevieve

    genevieve17
    Participant
    Posts: 0
    Joined: 13/04/2019
    #177226
    Reply To: Preimplantation Genetic Diagnosis

    Hi Genevieve17

    I remember a while back, one of our members talked about her experiences of pgd. She featured in a BBC3 documentary and the threads to various topics are in our archives on this forum.

    Here is one link

    We are without a search function T the moment but if you type “TalkMD Shona” into google then you should be able to find them.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
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