Viewing 4 posts - 1 through 4 (of 4 total)
  • #162200
    Research

    Hello! I’m doing a school project for my exams and i have chosen to do it on “how to aid someone with a disability/make their life easier” and I have chosen to use Duchenne Muscular Dystrophy and to find out what is not on the market that you’d like to see there/to see improved to aid your life and make it easier! all i need to know is what you struggle with on a daily basis and what you’d like help with, either as a carer or someone with MD.
    Many Thanks!

    daisy
    Participant
    Posts: 0
    Joined: 19/09/2018
    #162215
    Reply To: Research

    Hi Daisy welcome to forum

    I don’t have Duchenne myself but have friends who do and specially in my age group 30 to 40.

    What many of my DMD friends and other friends with other MDs feel the miss is of usable controllers or software to continue computer gaming.

    As someone with Duchenne or some other MDs is that the fine dexterity and motor skills in hands and arms reduces till very low function. Gaming is important social activity and a big miss.

    There is two systems that my friends often talk about

    1 adaptable and usable controllers.

    2 popular games enabled to work with a eye gaze system. an eye gaze system is a device via a tablet that the user can control with eye movement which is essential once hand control reduced.

    I know your project is specifically on duchenne. but another aid that would enhance the independence and privacy of Muscular dystrophy people with more ambient ability is adapted shower chairs. specifically a shower chair that can be easily self driven. Many ambient MD people suffer from degeneration in the ability to sit to stand. so a powered shower chair that is drive able via a control like a regular chair, with the added function of a riser seat that would aid a safe sit to stand independent of third party help.

    a chair like this would promote safety, privacy and independence. As well as freeing up carer obligation and time and in alot of situations paid carer wages costs.

    """""""What doesn't kill you makes you stronger""""""

    catatude
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #162247
    Reply To: Research

    Thank you so much, this was really helpful. Would it be okay for me to screen shot/ copy and paste this for my project? No personal information or anything will be exposed just your reply.

    daisy
    Participant
    Posts: 0
    Joined: 19/09/2018
    #162274
    Reply To: Research

    Yes Daisy thats ok. happy to help.

    """""""What doesn't kill you makes you stronger""""""

    catatude
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
Viewing 4 posts - 1 through 4 (of 4 total)

You must be logged in to reply to this topic.

Keep in touch
X
- Enter Your Location -
- or -