Sen school lack back to school help?

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  • #189570
    Sen school lack back to school help?

    Last update 31/July on medical info

    Anything new, as all who can are going back to school?

    Fact sheets/Forms/Leaflets for us to Print-out to give to heads for parents worried about their kids medical conditions?

    Any new medical advice regarding dystrophies and Corona?

    Is it Medically Advisable for our kids to go back?

    Waiting on Neurologist regarding my son and my partner who both have Myotonic Dystrophy With weakened immune system and reduced lung capacity with 1 on Sleep apnoea ventilator. Not a Doc but petty sure Covid not be a good mix with Pneumonia being greatest worry!

    MDUK?

    Carerof3myotonic
    Participant
    Posts: 0
    Joined: 29/08/2020
    #189626
    Reply To: Sen school lack back to school help?

    Hi And welcome to Forum,

    Very much in the same boat as yourself. The Scottish guidelines are work from home if you can, which I can for now. There does not seem to be any clear guidance on schooling for the sheltered group.

    Maybe someone on Facebook groups Trailblasers or neuromuscular alliance will have educational years guidance.

    """""""What doesn't kill you makes you stronger""""""

    Cat Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #189629
    Reply To: Sen school lack back to school help?

    Thank you Cat 🐈. Was wondering if anyone was going to answer, will do. FB is data collection Moneymaking scheme, same reason why wouldn’t use England government Test & Trace App. Been chasing both front benches And indySage on Twitter, Prof Alice Roberts asked the question and Dr Anthony Costello responded that he would Publish a small report for Send families. Did follow up requested easily understandable graph to help parents/ Head’s and services! As now waiting for the Fine to come through from SenSchool and Social Services visit, last time they Broke the human rights act and committed a hate crime against my Disabled Partner and Falsified evidence, where as daughters Local Primary School not a problem fully Understand standing and supporting! Won’t be hard to find me on Twitter as supporting a number MDUK families.

    Thank you

    Carerof3myotonic
    Participant
    Posts: 0
    Joined: 29/08/2020
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