Student Nurse wanting to hear family experience's with boys with DMD

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  • #156631
    Student Nurse wanting to hear family experience's with boys with DMD

    Hi I am a 2nd year student nurse,
    I hope this is okay to post on here. I have looked after a few children and young men with Duchenne Muscular Dystrophy, and I am really interested in the condition and I have chosen to focus on it for one of my assignments.
    I want to understand what it is like to a) live with the condition and b) what it is like for the families of these boys/young men. I want to hear about some of the challenges you face and how you overcome these.
    The reason that I want to hear from you guys yourself because it is very different to just reading it in a textbook, I don’t think they quite explain what it is like to live with DMD, and understanding what it is like for you can help me to improve the care I give to boys and young men with DMD in the future.
    Many thanks xx
    :ty:

    milzy01
    Participant
    Posts: 0
    Joined: 17/05/2018
    #156659
    Reply To: Student Nurse wanting to hear family experience's with boys with DMD

    Hello and welcome, and thank you for taking an interest in MD. I am sure that some of our forum members will be along shortly to offer their thoughts.Here would be an obvious choice

    Duchenne muscular dystrophy

    and you might like to look here too

    https://www.dfsg.org.uk/

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #156660
    Reply To: Student Nurse wanting to hear family experience's with boys with DMD

    Hello and welcome, and thank you for taking an interest in MD. I am sure that some of our forum members will be along shortly to offer their thoughts.Here would be an obvious choice

    Duchenne muscular dystrophy

    and you might like to look here too

    https://www.dfsg.org.uk/

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #159172
    Reply To: Student Nurse wanting to hear family experience's with boys with DMD

    Hello, yes I will be happy to talk to you if you wanted to. I, along with my brother and sister have been diagnosed with Duchenne Muscular Dystrophy.

    David

    Diggers14 Diggers14
    Participant
    Posts: 2
    Joined: 16/11/2014
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